Sunday, August 18, 2013

(posted by Greg)

For the past two weeks Monica's condition has remained pretty much the same (and, in some ways, thanks to the steroids, better). The extended visit by the kids has been been good for all of us. I think Monica is enjoying the activity (and affection) that surrounds her.

Last week we kept the long-arranged appointment at G.F. Strong for the botox treatment. I wasn't sure what they could do or would be willing to do for Monica given her situation. However, I am very glad that we kept the appointment. They (it is a team of a dr, occupational therapist and physiotherapist) were very empathetic with Monica and gave her a series of injections to make it easier and less painful for us to both transfer and clean her. They also had some useful suggestions for us as caregivers regarding how to use the muscle relaxants and how to transfer her.After only a few days, we are noticing some beneficial effects. They also made it clear that we could come back for a further injection if necessary.

On Wednesday, Daniel's daughter, Mollie, joined Daniel (she had been with her mother in Alaska for the summer). Daniel and Mollie arrived home that night just as we were putting Monica to bed. The smile on Monica's face when she saw Mollie is something that I will remember for a long time.

Mollie has brought a different dynamic and energy level to the house. Monica is clearly enjoying watching Mollie and interacting with her. Mollie is very gentle with Monica and wants to help with everything. So, Grandma's daily spa team now has a 5 year old helping with her bath and the shampooing of her hair (not to mention operating the bath lift).

I am becoming more and more aware that I will soon need to make alternate arrangements to help me with Monica 's care. Jesse has to go to Inuvik for a month starting August 26th, Daniel needs to take Mollie back to Boise for kindergarten and Marley will be starting classes again on August 26th.  At this point, the Homecare Service is going to provide help in the mornings and evenings with dressing and sponge-baths etc. Marley and I will probably give Monica a full bath in the evenings every other day. I haven't yet made a final decision but I think that I will hire someone else to help me with Monica for a part of each day (So that I can shop, exercise, pop in to the office etc.)