(posted by Greg)
Monica spent a quiet day at home today alone. I worked most of the day but came home early so that we could visit both Opa and Oma. We visited Opa first ( it seems strange for him to be in the house alone without Oma) and then went to the hospital to visit Oma. Her condition seems about the same. Monica and I got home late, had a quiet dinner and went to bed early.
The family (with the timely and welcome help of Monica's Aunt and cousin) was able to locate a nice nursing home in Langley which will be able to accomodate both Oma (who will need quite a high level of care) and Opa. It will be good that they can both be in the same home. Opa seems to be ok with this arrangement and Oma is definitely for it.
Thursday, September 29, 2011
Tuesday, September 27, 2011
Tuesday, September 27, 2011
(posted by Greg)
Oma's condition is about the same. We expect that, as her condition stabiizes, she will likely be transferred from the hospital to a care home that can provide the appropriate level of care. The family is starting to look around for a good situation (good care, nice facilities and access for visits from every one).
Monica visited her mother with Daniel and Mollie and spent most of the day with them. They will leave for Boise in the early hours of the morning. Marley is keeping them company to Boise and flying from there for a planned visit to her boyfriend at Purdue. Fortunately, Marley purchased travel insurance so that she can fly home quickly should it be necessary. Our house will be pretty quiet tomorrow.
Oma's condition is about the same. We expect that, as her condition stabiizes, she will likely be transferred from the hospital to a care home that can provide the appropriate level of care. The family is starting to look around for a good situation (good care, nice facilities and access for visits from every one).
Monica visited her mother with Daniel and Mollie and spent most of the day with them. They will leave for Boise in the early hours of the morning. Marley is keeping them company to Boise and flying from there for a planned visit to her boyfriend at Purdue. Fortunately, Marley purchased travel insurance so that she can fly home quickly should it be necessary. Our house will be pretty quiet tomorrow.
Monday, September 26, 2011
(posted by Greg)
Not a lot new to blog about today. We are spending a lot of time and energy focused on Oma (whose condition has not improved much and who remains in the hospital) and Opa. Otherwise our home is busy (happily) with Daniel and Mollie who will be heading back to Boise soon (likely Wednesday).
Monica is focused as well on her mom and dad. But I am really not sure how this is affecting her. I know it bothers her to see her Mom and Dad failing and, while it gives her something other than herself to think about, I worry that the stress and emotional upset is not good for her. I think that we will have to be mindful of this and look for opportunities to get her focused in a positive way on her health.
Not a lot new to blog about today. We are spending a lot of time and energy focused on Oma (whose condition has not improved much and who remains in the hospital) and Opa. Otherwise our home is busy (happily) with Daniel and Mollie who will be heading back to Boise soon (likely Wednesday).
Monica is focused as well on her mom and dad. But I am really not sure how this is affecting her. I know it bothers her to see her Mom and Dad failing and, while it gives her something other than herself to think about, I worry that the stress and emotional upset is not good for her. I think that we will have to be mindful of this and look for opportunities to get her focused in a positive way on her health.
Sunday, September 25, 2011
Saturday, September 24, 2011
(posted by Greg)
The last two days have been quite hectic with a lot of time being spent at Richmond Hospital. As I mentioned in my last blog, Monica's mother (who has serious heart problems) had been admitted to the hospital on Thursday with kidney failure. In simple terms, it will be difficult to treat both conditions. Her body needs more fluids to help her kidneys operate but the more fluids that are in her system make it harder for her heart to function. Even before this last problem, she has been very weak and had problems maintaining her breath when talking.
On Thursday, Oma (who remains mentally sharp) after considering the poor treatment options and the quality of her life decided not to have the physicians actively treat her further. After spending 24 hours in the hospital however and "perking up" a bit, she has re-visited that decision. Oma and most of the family met with the Doctor today to again review her situation. For now, she has decided to resume her heart medications and to have the physician do what he can to treat the kidney problem ( i.e. he will give her a limited amount of fluids intravenously). It is very clear however that she will not be able to return home and, as part of her decision, she will now be going into a nursing home when she is released from the hospital.
As you can imagine it has been an emotional couple of days for Monica and all of us. However, at least the need to make a decision about her living arrangements has now been resolved.
As it happens, on Friday evening Opa was also admitted to the hospital. While everyone else was at the hospital, he got in a predicament at home where he was picking some tomatoes, wound up on the ground and could not get up. A neighbour called the ambulance and he wound up in the emergency ward. The family had spent a frantic couple of hours trying to locate him before learning he was two floors below Oma.
Opa was released from the hospital Friday night but it seems pretty clear to all concerned (including Opa - we think) that he will not be able to be alone in their home and that he will need to go into a home as well. So, we will have lots of decisions in the next week or so. Fortunately, Ingo is taking the lead (with quite a bit of help from Marley and Jesse) on these issues so that Monica can, to the extent possible, focus on her own health and continue to get more rest.
Monica's neutrophils were low again in the last blood test. So, she is again susceptible to infections and we are having to be careful with all of the hospital visits.
The last two days have been quite hectic with a lot of time being spent at Richmond Hospital. As I mentioned in my last blog, Monica's mother (who has serious heart problems) had been admitted to the hospital on Thursday with kidney failure. In simple terms, it will be difficult to treat both conditions. Her body needs more fluids to help her kidneys operate but the more fluids that are in her system make it harder for her heart to function. Even before this last problem, she has been very weak and had problems maintaining her breath when talking.
On Thursday, Oma (who remains mentally sharp) after considering the poor treatment options and the quality of her life decided not to have the physicians actively treat her further. After spending 24 hours in the hospital however and "perking up" a bit, she has re-visited that decision. Oma and most of the family met with the Doctor today to again review her situation. For now, she has decided to resume her heart medications and to have the physician do what he can to treat the kidney problem ( i.e. he will give her a limited amount of fluids intravenously). It is very clear however that she will not be able to return home and, as part of her decision, she will now be going into a nursing home when she is released from the hospital.
As you can imagine it has been an emotional couple of days for Monica and all of us. However, at least the need to make a decision about her living arrangements has now been resolved.
As it happens, on Friday evening Opa was also admitted to the hospital. While everyone else was at the hospital, he got in a predicament at home where he was picking some tomatoes, wound up on the ground and could not get up. A neighbour called the ambulance and he wound up in the emergency ward. The family had spent a frantic couple of hours trying to locate him before learning he was two floors below Oma.
Opa was released from the hospital Friday night but it seems pretty clear to all concerned (including Opa - we think) that he will not be able to be alone in their home and that he will need to go into a home as well. So, we will have lots of decisions in the next week or so. Fortunately, Ingo is taking the lead (with quite a bit of help from Marley and Jesse) on these issues so that Monica can, to the extent possible, focus on her own health and continue to get more rest.
Monica's neutrophils were low again in the last blood test. So, she is again susceptible to infections and we are having to be careful with all of the hospital visits.
Friday, September 23, 2011
Thursday, September 22, 2011
(posted by Greg)
This day started with one of those "bad " phone calls that we have been dreading. Opa called early to let us know that Oma had been taken to the emergency department at 6:00 a.m. In shifts, the family spent most of the day at the hospital. Apparently, Oma's kidney's aren't working and her ongoing treatment has become problematic. I will write more about this at another time but, essentially, Oma (who is mentally still exceptionally bright) has opted not to have the risky type of treatment which would be needed but which would not (given her condition- in particular the condition of her heart) likely have much success and likely only prolong the inevitable. She has opted for a more comforting type of treatment which will essentially mean that she is receiving palliative care.
I will blog more about this care and about Oma when I have an opportunity.
This day started with one of those "bad " phone calls that we have been dreading. Opa called early to let us know that Oma had been taken to the emergency department at 6:00 a.m. In shifts, the family spent most of the day at the hospital. Apparently, Oma's kidney's aren't working and her ongoing treatment has become problematic. I will write more about this at another time but, essentially, Oma (who is mentally still exceptionally bright) has opted not to have the risky type of treatment which would be needed but which would not (given her condition- in particular the condition of her heart) likely have much success and likely only prolong the inevitable. She has opted for a more comforting type of treatment which will essentially mean that she is receiving palliative care.
I will blog more about this care and about Oma when I have an opportunity.
Wednesday, September 21, 2011
(posted by Greg)
Fortunately, I checked the calendar and realized that Monica's follow-up with the radiation oncologist was today and not Thursday as I first thought. I took Monica to the Cancer Agency for our late afternoon appointment. While we were waiting our nurse practitioner noticed us and arranged for Monica' blood test to be taken while we were waiting rather than on Friday. We also had a brief chance to speak with the chemo oncologist. In response to a question from me, he said that they are not planning to resume the chemo on a monthly basis for 6 months (as originally planned) because Monica's bone marrow (for genetic reasons) really doesn't like the chemo. He did say in passing that, in some cases, it means that the chemo works well against the tumour as well. (fingers-crossed!).
The follow-up with the radiation oncologist was fairly routine. He was however able to confirm that Monica's MRI is scheduled for October 21st . He explained that they like to wait a couple of months following the last radiation to help ensure that the readings are more accurate (because they are not picking up swelling from the radiation.
Fortunately, I checked the calendar and realized that Monica's follow-up with the radiation oncologist was today and not Thursday as I first thought. I took Monica to the Cancer Agency for our late afternoon appointment. While we were waiting our nurse practitioner noticed us and arranged for Monica' blood test to be taken while we were waiting rather than on Friday. We also had a brief chance to speak with the chemo oncologist. In response to a question from me, he said that they are not planning to resume the chemo on a monthly basis for 6 months (as originally planned) because Monica's bone marrow (for genetic reasons) really doesn't like the chemo. He did say in passing that, in some cases, it means that the chemo works well against the tumour as well. (fingers-crossed!).
The follow-up with the radiation oncologist was fairly routine. He was however able to confirm that Monica's MRI is scheduled for October 21st . He explained that they like to wait a couple of months following the last radiation to help ensure that the readings are more accurate (because they are not picking up swelling from the radiation.
Tuesday, September 20, 2011
Monday, September 19, 2011
(posted by Greg)
Daniel, Mollie and Monica were alone most of the day ( I worked and Marley was working for GBC Law giving out cupcakes at a hole sponsored by GBC Law in a local golf tournament). I am happy that Daniel is getting to spend some good time with Monica.
Later this week (Thursday) Monica has a follow-up visit with the radiation oncologist and she will be having her blood work done again on Friday. We are in a bit of a holding pattern with Monica right now- waiting for her to feel strong enough to travel a bit and waiting to see how effective the treatments have been. The day-to-day routine around home is nice and we are having some good time together as a family but the uncertainty is hard to deal with sometimes.
Daniel, Mollie and Monica were alone most of the day ( I worked and Marley was working for GBC Law giving out cupcakes at a hole sponsored by GBC Law in a local golf tournament). I am happy that Daniel is getting to spend some good time with Monica.
Later this week (Thursday) Monica has a follow-up visit with the radiation oncologist and she will be having her blood work done again on Friday. We are in a bit of a holding pattern with Monica right now- waiting for her to feel strong enough to travel a bit and waiting to see how effective the treatments have been. The day-to-day routine around home is nice and we are having some good time together as a family but the uncertainty is hard to deal with sometimes.
Sunday, September 18, 2011
(posted by Greg)
Not much to blog about today.I had to work a bit and Marley had to coach soccer. Daniel, Mollie and Monica had a quiet day at home together and made a trip to the Mall together and we had a nice family supper. Jesse was away this weekend at Glacier school so he was m.i.a.
It is hard to tell if Monica's energy levels are improving or not. Sometimes I think so and at other times I think it is my imagination. I will be interested in seeing the blood test results next week.
Not much to blog about today.I had to work a bit and Marley had to coach soccer. Daniel, Mollie and Monica had a quiet day at home together and made a trip to the Mall together and we had a nice family supper. Jesse was away this weekend at Glacier school so he was m.i.a.
It is hard to tell if Monica's energy levels are improving or not. Sometimes I think so and at other times I think it is my imagination. I will be interested in seeing the blood test results next week.
Saturday, September 17, 2011
(posted by Greg)
The weather wasn't too good today but during a break managed to all (Daniel, Mollie, Marley and Monica) go to the Farmer's Market at Burnaby Village where we were able to buy some fresh organic produce. The highlight for us all was the restored Carousel. It was open and Mollie was able to have a couple of rides. She had the biggest smiles and would wave at us each time her horse came around. Her disposition and unreserved childlike responses are good medicine for us all (particularly Monica of course).Mollie talks to Monica and interacts with her in a completely natural way and without any regard for Monica's health issues. I think that Monica actually likes this and it is good for her.
The weather wasn't too good today but during a break managed to all (Daniel, Mollie, Marley and Monica) go to the Farmer's Market at Burnaby Village where we were able to buy some fresh organic produce. The highlight for us all was the restored Carousel. It was open and Mollie was able to have a couple of rides. She had the biggest smiles and would wave at us each time her horse came around. Her disposition and unreserved childlike responses are good medicine for us all (particularly Monica of course).Mollie talks to Monica and interacts with her in a completely natural way and without any regard for Monica's health issues. I think that Monica actually likes this and it is good for her.
Saturday, September 17, 2011
Friday, September 16, 2011
(posted by Greg)
It is amazing how quickly a 3 and 1/2 yr old can change the sounds and feelings around a house. Daniel and Mollie arrived around supper time. We were real happy to see them both and especially enjoyed Mollie's hugs and kisses. It took Mollie about 5 minutes to remember where everything was, play (word used loosely) the piano, expropriate the quilt Cathy had made for Monica and generally take over. It was great and especially nice to see Monica's reaction to having Mollie around. She was obviously happy and had obviously had all of her maternal instincts quickly re-kindled. I enjoyed it too ( not sure when I last said "Coming ready or not!" and pretended not to see the little girl saying "Grandpa, I am over here!")
We should be in for some fun for the next week or so. We are looking forward to the visit.
It is amazing how quickly a 3 and 1/2 yr old can change the sounds and feelings around a house. Daniel and Mollie arrived around supper time. We were real happy to see them both and especially enjoyed Mollie's hugs and kisses. It took Mollie about 5 minutes to remember where everything was, play (word used loosely) the piano, expropriate the quilt Cathy had made for Monica and generally take over. It was great and especially nice to see Monica's reaction to having Mollie around. She was obviously happy and had obviously had all of her maternal instincts quickly re-kindled. I enjoyed it too ( not sure when I last said "Coming ready or not!" and pretended not to see the little girl saying "Grandpa, I am over here!")
We should be in for some fun for the next week or so. We are looking forward to the visit.
Thursday, September 15, 2011
(posted by "Curly")
When Monica had her surgery, we joked with her and the surgeon by asking if we could put in a request for any "super powers". Since her surgery, we have joked that Monica has been given "super hearing" because she seems to be able to hear every little thing we say (especially if we are talking about her or her tumour). Last night it became apparent that the surgeon may have tinkered with her sense of humour.
Monica had been cleaning out Jesse's old room so that Mollie could use it when she arrives. Near the stairs on our main living level, Monica had piled several things which she wanted me to put in the garage for storage. As we went to bed, she asked me to put them away right then as she was afraid that I would trip on them if I came down the stairs during the night. I was feeling particularly tired and a bit lazy so I told her "they are all right there I won't trip on them. I will move them in the morning". I went upstairs to go to bed.
When I got upstairs, I realized that something was open in the basement and I had to go back down two flights of stairs to close it so that I could "arm" the burglar alarm". Being tired, I wasn't happy about having to go back down, and momentarily blew my stack when I (you guessed it!) stubbed my toe and tripped on the items Monica had wanted me to put away. Knowing that it always helps to do this, I lost my temper and bellowed out a few choice expletives that I learned when I worked up North ( such as "Oh my gosh!).
The last thing I wanted to hear (especially while my toe was still hurting) were any comments on what had just happened or any reminders on how I had been forewarned. You can no doubt imagine how I was feeling when I went back upstairs where it was eerily quiet. ( I learned later that Marley practically had to gag Monica to stop her from saying anything). All remained very quiet until after Monica and I had been in bed for about 5 minutes. Then, Monica couldn't contain herself any more and broke out into the deepest and longest belly laugh that I have ever heard from her. The laugh was great (almost worth the stubbed toe) and infectious so that before long the 3 of us had a good family laugh and I had a good laugh when Marley told me how hard she had to work to stop Monica from saying anything in those first few minutes after I tripped.
I think I will see if Larry and Moe can look after the entertainment tonight.
When Monica had her surgery, we joked with her and the surgeon by asking if we could put in a request for any "super powers". Since her surgery, we have joked that Monica has been given "super hearing" because she seems to be able to hear every little thing we say (especially if we are talking about her or her tumour). Last night it became apparent that the surgeon may have tinkered with her sense of humour.
Monica had been cleaning out Jesse's old room so that Mollie could use it when she arrives. Near the stairs on our main living level, Monica had piled several things which she wanted me to put in the garage for storage. As we went to bed, she asked me to put them away right then as she was afraid that I would trip on them if I came down the stairs during the night. I was feeling particularly tired and a bit lazy so I told her "they are all right there I won't trip on them. I will move them in the morning". I went upstairs to go to bed.
When I got upstairs, I realized that something was open in the basement and I had to go back down two flights of stairs to close it so that I could "arm" the burglar alarm". Being tired, I wasn't happy about having to go back down, and momentarily blew my stack when I (you guessed it!) stubbed my toe and tripped on the items Monica had wanted me to put away. Knowing that it always helps to do this, I lost my temper and bellowed out a few choice expletives that I learned when I worked up North ( such as "Oh my gosh!).
The last thing I wanted to hear (especially while my toe was still hurting) were any comments on what had just happened or any reminders on how I had been forewarned. You can no doubt imagine how I was feeling when I went back upstairs where it was eerily quiet. ( I learned later that Marley practically had to gag Monica to stop her from saying anything). All remained very quiet until after Monica and I had been in bed for about 5 minutes. Then, Monica couldn't contain herself any more and broke out into the deepest and longest belly laugh that I have ever heard from her. The laugh was great (almost worth the stubbed toe) and infectious so that before long the 3 of us had a good family laugh and I had a good laugh when Marley told me how hard she had to work to stop Monica from saying anything in those first few minutes after I tripped.
I think I will see if Larry and Moe can look after the entertainment tonight.
Wednesday, September 14, 2011
Wednesday, September 14, 2011
(posted by Greg)
We all got going early today. I had a busy day ahead of me at the office. Monica and Marley went to InspireHealth and participated in a 2 hour course on the Mind-Body Connection. I understand that there was a lot of discussion about the effects of stress etc. The clear message (supported by scientific data) was how "the state of our minds, our stress levels, our moods, thoughts, attitudes and beliefs" can affect how our body, and in particular our immune system works. One quote from the handout by Dr. Teresa Clarke summarizes the course - "Learning how to relax, how to balance our lives, how to enjoy loving relationships and how to cultivate a healthy state of mind will help us move along toward better health and vitality and improve our chances of recovery from illness."
Monica and Marley enjoyed the course which was well-attended. They re-connected with a friend who has different type of cancer and who finished her radiation a couple of weeks prior to Monica. She has a blog as well which I found interesting to look at and compare with our blog. Her "style"is different but is quite effective as well.
We all got going early today. I had a busy day ahead of me at the office. Monica and Marley went to InspireHealth and participated in a 2 hour course on the Mind-Body Connection. I understand that there was a lot of discussion about the effects of stress etc. The clear message (supported by scientific data) was how "the state of our minds, our stress levels, our moods, thoughts, attitudes and beliefs" can affect how our body, and in particular our immune system works. One quote from the handout by Dr. Teresa Clarke summarizes the course - "Learning how to relax, how to balance our lives, how to enjoy loving relationships and how to cultivate a healthy state of mind will help us move along toward better health and vitality and improve our chances of recovery from illness."
Monica and Marley enjoyed the course which was well-attended. They re-connected with a friend who has different type of cancer and who finished her radiation a couple of weeks prior to Monica. She has a blog as well which I found interesting to look at and compare with our blog. Her "style"is different but is quite effective as well.
Tuesday, September 13, 2011
(posted by Greg)
Monica and Marley had a busy day. A morning visit to Oma and Opa where they did some chores for Oma. After that they did some chores around the house (as we tidy up in anticipation of the arrival of Daniel and Mollie). Marley reports that Monica was quite tired and fell to sleep while they took a break and watched T.V. in the afternoon
Monica and Marley had a busy day. A morning visit to Oma and Opa where they did some chores for Oma. After that they did some chores around the house (as we tidy up in anticipation of the arrival of Daniel and Mollie). Marley reports that Monica was quite tired and fell to sleep while they took a break and watched T.V. in the afternoon
Monday, September 12, 2011
Monday, September 12, 2011
(posted by Greg)
Monica's supplement supply was getting very low so she and Marley visited Finlandia Drugs.( This is a really well-stocked drug store with a lot of natural medicines and supplements on West Broadway), While in that neck of the woods, they dropped in on a beginner's yoga class at InspireHealth. They both seemed to like it and it was only near the end that Monica got tired.
At home today, Monica worked on getting one of the bedrooms ready for Daniel and Mollie. We are looking forward to their visit.
Monica's supplement supply was getting very low so she and Marley visited Finlandia Drugs.( This is a really well-stocked drug store with a lot of natural medicines and supplements on West Broadway), While in that neck of the woods, they dropped in on a beginner's yoga class at InspireHealth. They both seemed to like it and it was only near the end that Monica got tired.
At home today, Monica worked on getting one of the bedrooms ready for Daniel and Mollie. We are looking forward to their visit.
Sunday, September 11, 2011
Sunday, September 11, 2011
(posted by Greg)
We enjoyed the weather today and spent the better part of the day around home. Friends had given us some fresh fruit from Osoyoos and we really enjoyed it.
Monica, Marley and I went to visit Oma and Opa and then drove to White Rock. Ingo had made a fresh stew and we couldn't pass up on the invitation.
One of the noticeable effects of Monica's tumour was that she has not been as emotional as you might otherwise expect. She had an interesting reaction today to one of the 9/11 anniversary shows. It was a fairly upbeat show on how the people of Gander had reacted to the people forced to land there. For some reason (which I am not sure I understand), it made Monica cry quite a bit. Before long we were all intermittently crying and laughing!
We enjoyed the weather today and spent the better part of the day around home. Friends had given us some fresh fruit from Osoyoos and we really enjoyed it.
Monica, Marley and I went to visit Oma and Opa and then drove to White Rock. Ingo had made a fresh stew and we couldn't pass up on the invitation.
One of the noticeable effects of Monica's tumour was that she has not been as emotional as you might otherwise expect. She had an interesting reaction today to one of the 9/11 anniversary shows. It was a fairly upbeat show on how the people of Gander had reacted to the people forced to land there. For some reason (which I am not sure I understand), it made Monica cry quite a bit. Before long we were all intermittently crying and laughing!
Saturday, September 10, 2011
(posted by Greg)
After a nice breakfast today, we went and walked around the Farmer's Market at Trout Lake Part. It is obvious from the array of fresh fruit and vegetables that the harvest season is upon us. We stocked up on a few things (the organic red peppers were about 1/2 of what we have paid sometimes.) and enjoyed the poking around.
After a lunch ( with the fresh organic whole wheat bread), we drove to Cloverdale and watched a dog show with Ingo (he has a German Shepherd puppy and it was a German Shepherd show. There were some beautiful dogs and it was quite interesting to watch. The owners and trainers take the show pretty seriously (and I thought soccer parents were competitive.). Not sure if I enjoyed the dog watching or the people watching more.
We took our organic peppers to Ingo's and had a great Greek salad and fresh Chilliwack corn for supper . we watched the first part of Harry Potter and the Deathly Hallows. Ingo needed to see it before he and Marley go to theatre to see the latest show.
After a nice breakfast today, we went and walked around the Farmer's Market at Trout Lake Part. It is obvious from the array of fresh fruit and vegetables that the harvest season is upon us. We stocked up on a few things (the organic red peppers were about 1/2 of what we have paid sometimes.) and enjoyed the poking around.
After a lunch ( with the fresh organic whole wheat bread), we drove to Cloverdale and watched a dog show with Ingo (he has a German Shepherd puppy and it was a German Shepherd show. There were some beautiful dogs and it was quite interesting to watch. The owners and trainers take the show pretty seriously (and I thought soccer parents were competitive.). Not sure if I enjoyed the dog watching or the people watching more.
We took our organic peppers to Ingo's and had a great Greek salad and fresh Chilliwack corn for supper . we watched the first part of Harry Potter and the Deathly Hallows. Ingo needed to see it before he and Marley go to theatre to see the latest show.
Friday, September 9, 2011
(posted by Greg)
Was there an old saying "The family that takes blood tests together stays....."
Marley, Monica and I all went together for blood tests. The ones for Marley and I were part of our regular check-ups. I managed to fast for the required 12 hours prior to the test. Monica was having her blood checked again for the Cancer Agency. Her platelets and neutrophils have continued to improve and her hemoglobin, while low, has levelled off at least. They are going to give her a week off so we don't have another blood test for two weeks.
Just in case we get too relaxed however they have scheduled a a follow-up visit with the fill-in radiation oncologist for Thursday.
Was there an old saying "The family that takes blood tests together stays....."
Marley, Monica and I all went together for blood tests. The ones for Marley and I were part of our regular check-ups. I managed to fast for the required 12 hours prior to the test. Monica was having her blood checked again for the Cancer Agency. Her platelets and neutrophils have continued to improve and her hemoglobin, while low, has levelled off at least. They are going to give her a week off so we don't have another blood test for two weeks.
Just in case we get too relaxed however they have scheduled a a follow-up visit with the fill-in radiation oncologist for Thursday.
Thursday, September 8, 2011
Thursday, September 8, 2011
(posted by Greg)
Monica and Marley went this morning to visit Oma and Opa . I understand that it was a good visit. After lunch they did some chores (returning a set of sheets, trip to the bottle depot and then went shopping. It was a pleasant surprise for me (especially as I was having a busy day at work and had nothing planned for dinner) to come home and find that they had prepared dinner.
Tomorrow is another visit to the lab for a blood test for Monica. I am fasting tonight so that I can have my blood work done at the same time for my doctor.
Monica and Marley went this morning to visit Oma and Opa . I understand that it was a good visit. After lunch they did some chores (returning a set of sheets, trip to the bottle depot and then went shopping. It was a pleasant surprise for me (especially as I was having a busy day at work and had nothing planned for dinner) to come home and find that they had prepared dinner.
Tomorrow is another visit to the lab for a blood test for Monica. I am fasting tonight so that I can have my blood work done at the same time for my doctor.
Wednesday, September 7, 2011
(posted by Greg)
Monica and I attended the Brain Tumour Support Group today at the Cancer Agency. The group was well attended again. This is the 4th time we have participated so we are beginning to know many of the people. Unfortunately, each time there seems to be someone who has been new diagnosed.
Each session begins with one of the co-ordinators explaining the rules for the group (i.e. the need to keep the confidences of what people say and their obligation to do something if they felt someone was going to hurt themself or others ). Then each person identifies themselves to the group and tells the group whether he or she is the patient or a caregiver. Some people relay more of their history and the problems they are experiencing than others but there is no obligation to speak. Many of the stories are compelling and touching. The group meetings mean a lot to many of the participants.
Monica and I each get a lot from the support group as well. It is often informative and educational. This time the group split into two after the coffee break (de-caffinated green tea in my case). The patients stayed together as one group and the caregivers went to a separate room. Monica said that the patients' group talked quite a bit about seizures which is one of the common symptoms and side effects. I would like to have heard that discussion myself.
It was useful for me to listen to the other caregivers. Each caregiver's situation is different (I feel fortunate in many ways: ie. the flexibility that my job gives me, the love and support which we get from extended family and friends, the support that that my kids provide, the fact that Monica is doing as well as she is so far, our family's ability to provide what Monica needs). You quickly realize that some of the caregivers' loved ones are in worse situations and that some of them don't have the support that I enjoy. It was also useful to share some of the frustrations and worries that the caregivers have in common.
I went to work in the afternoon and Monica rested in the afternoon. She often feels cold but the weather was warm enough for her to enjoy the patio today where she was napping when I came home. Marley was out for the day (working for GBC Law who sponsored a hole at the Burnaby Board of Trade Golf tournament and coaching). Monica and I together prepared a big salad for supper and ate with Marley when she got home.
Monica and I attended the Brain Tumour Support Group today at the Cancer Agency. The group was well attended again. This is the 4th time we have participated so we are beginning to know many of the people. Unfortunately, each time there seems to be someone who has been new diagnosed.
Each session begins with one of the co-ordinators explaining the rules for the group (i.e. the need to keep the confidences of what people say and their obligation to do something if they felt someone was going to hurt themself or others ). Then each person identifies themselves to the group and tells the group whether he or she is the patient or a caregiver. Some people relay more of their history and the problems they are experiencing than others but there is no obligation to speak. Many of the stories are compelling and touching. The group meetings mean a lot to many of the participants.
Monica and I each get a lot from the support group as well. It is often informative and educational. This time the group split into two after the coffee break (de-caffinated green tea in my case). The patients stayed together as one group and the caregivers went to a separate room. Monica said that the patients' group talked quite a bit about seizures which is one of the common symptoms and side effects. I would like to have heard that discussion myself.
It was useful for me to listen to the other caregivers. Each caregiver's situation is different (I feel fortunate in many ways: ie. the flexibility that my job gives me, the love and support which we get from extended family and friends, the support that that my kids provide, the fact that Monica is doing as well as she is so far, our family's ability to provide what Monica needs). You quickly realize that some of the caregivers' loved ones are in worse situations and that some of them don't have the support that I enjoy. It was also useful to share some of the frustrations and worries that the caregivers have in common.
I went to work in the afternoon and Monica rested in the afternoon. She often feels cold but the weather was warm enough for her to enjoy the patio today where she was napping when I came home. Marley was out for the day (working for GBC Law who sponsored a hole at the Burnaby Board of Trade Golf tournament and coaching). Monica and I together prepared a big salad for supper and ate with Marley when she got home.
Wednesday, September 7, 2011
Tuesday, September 6, 2011
(posted by Greg)
I worked again today. Marley and Monica did quite a bit of running around (banking and some shopping). Monica wanted to give a gift to the radiation team at B.C. Cancer so they bought some nice jars/glasses to decorate and a bunch of jelly beans. We go tomorrow to the brain tumour support group at the B.C. Cancer Agency and will deliver the gifts then.
Monica and I had got her personal recipe book out on the weekend for a salad recipe that we like. Monica found another good salad recipe in it today and I was pleasantly surprised to have dinner ready when I got home.
Monica and I went out after dinner and to visit Choice's and Donald's to stock up our cupboard.
I worked again today. Marley and Monica did quite a bit of running around (banking and some shopping). Monica wanted to give a gift to the radiation team at B.C. Cancer so they bought some nice jars/glasses to decorate and a bunch of jelly beans. We go tomorrow to the brain tumour support group at the B.C. Cancer Agency and will deliver the gifts then.
Monica and I had got her personal recipe book out on the weekend for a salad recipe that we like. Monica found another good salad recipe in it today and I was pleasantly surprised to have dinner ready when I got home.
Monica and I went out after dinner and to visit Choice's and Donald's to stock up our cupboard.
Monday, September 5, 2011
(posted by Greg)
Monica and stayed home today. She had one part of the flower garden that she wanted to have cleaned up. So, we tackled it together. I did the heavier stuff. Monica did the lighter stuff and took on the responsibility for supervising the labourer. The weather was great, it was quite relaxing and we got a lot done.
When Monica is doing this type of work, I can see that she doesn't have the stamina or strength that she used to have.
I made homemade pizzas for supper and Monica washed and froze the blueberries which we got from Pat.
Monica and stayed home today. She had one part of the flower garden that she wanted to have cleaned up. So, we tackled it together. I did the heavier stuff. Monica did the lighter stuff and took on the responsibility for supervising the labourer. The weather was great, it was quite relaxing and we got a lot done.
When Monica is doing this type of work, I can see that she doesn't have the stamina or strength that she used to have.
I made homemade pizzas for supper and Monica washed and froze the blueberries which we got from Pat.
Sunday, September 4, 2011
(posted by Greg)
Last night's dessert turned out ok. The tapioca pearls were good but the fruit slushie was a bit runny. We tried it again today and everything turned out much better when we used frozen juice ice cubes and frozen fruit. We spiced up the pearls with some maple syrup too.
My brother Pat had picked up some organic blueberries for us in Abbotsford. So, Monica and I drove to Maple Ridge to pick up the blueberries and had a nice visit with Pat and Joyce. They also picked a nice bucket of fresh blackberries for us.
On the way home we stopped at another organic store in Coquitlam (Planet Organics) and bought the fixing for supper. Each of these stores carry different products and there is quite a range in the prices. We liked this store and plan on going back
Last night's dessert turned out ok. The tapioca pearls were good but the fruit slushie was a bit runny. We tried it again today and everything turned out much better when we used frozen juice ice cubes and frozen fruit. We spiced up the pearls with some maple syrup too.
My brother Pat had picked up some organic blueberries for us in Abbotsford. So, Monica and I drove to Maple Ridge to pick up the blueberries and had a nice visit with Pat and Joyce. They also picked a nice bucket of fresh blackberries for us.
On the way home we stopped at another organic store in Coquitlam (Planet Organics) and bought the fixing for supper. Each of these stores carry different products and there is quite a range in the prices. We liked this store and plan on going back
Saturday, September 3, 2011
Saturday, September 3, 2011
(posted by Greg)
Monica, Marley and I went to Steveston for a visit with Oma and Opa this morning. We picked up some groceries for them. Marley dropped Monica and I off in Steveston and we walked through the town and caught up with Marley at Oma's The visit was nice.
Monica took me shopping in the afternoon for some new jeans. We were out for a couple of hours by the time we bought groceries for ourselves. Monica was quite tired and had a good nap.
Tonight we are trying to make a special dessert. Marley is going to make a fruit smoothie from some fresh fruit we bought. Monica and I had bought some tapioca pearls at the T& T market and so we are trying our home-grown version of a bubble drink. ( I will keep you posted on how it turns out.)
Monica, Marley and I went to Steveston for a visit with Oma and Opa this morning. We picked up some groceries for them. Marley dropped Monica and I off in Steveston and we walked through the town and caught up with Marley at Oma's The visit was nice.
Monica took me shopping in the afternoon for some new jeans. We were out for a couple of hours by the time we bought groceries for ourselves. Monica was quite tired and had a good nap.
Tonight we are trying to make a special dessert. Marley is going to make a fruit smoothie from some fresh fruit we bought. Monica and I had bought some tapioca pearls at the T& T market and so we are trying our home-grown version of a bubble drink. ( I will keep you posted on how it turns out.)
Friday, September 2, 2011
(posted by Greg)
I took Monica for her blood test this morning. The lab was very busy (about 30 people ahead of Monica). I was going to have my blood tested today (my doctor had prescribed a 6 month test after my last physical). I couldn't do it however as I forgot that I was supposed to fast for 12 hours . For sake of maintaining symmetry in my life, I may have to "read up" on how to best do organic fasting
We got the results from the blood test in the late afternoon. Rosemary (the nurse-practitioner who we most often deal with) commented that they are getting better but slowly. Monica's platelets have improved (actually her numbers scared me a bit when I realized how low her platelets were at one point) and her white blood cells are a little better. Her hemoglobin did not drop but did not go up much . The nurse summarized it by saying that she is still anemic. So, another blood test is scheduled for next Friday ( I guess I am fasting on Thursday). If Monica feels good and if next week's numbers are steady, they may give her a week off from the blood tests.
I took Monica for her blood test this morning. The lab was very busy (about 30 people ahead of Monica). I was going to have my blood tested today (my doctor had prescribed a 6 month test after my last physical). I couldn't do it however as I forgot that I was supposed to fast for 12 hours . For sake of maintaining symmetry in my life, I may have to "read up" on how to best do organic fasting
We got the results from the blood test in the late afternoon. Rosemary (the nurse-practitioner who we most often deal with) commented that they are getting better but slowly. Monica's platelets have improved (actually her numbers scared me a bit when I realized how low her platelets were at one point) and her white blood cells are a little better. Her hemoglobin did not drop but did not go up much . The nurse summarized it by saying that she is still anemic. So, another blood test is scheduled for next Friday ( I guess I am fasting on Thursday). If Monica feels good and if next week's numbers are steady, they may give her a week off from the blood tests.
Thursday, September 1, 2011
(posted by Greg)
Monica and I were alone today. Ingo had taken Marley for a re-write of her MCAT in an effort to better her score. I came home from work a bit early and barbequed a small fillet of salmon. We had dinner early (for a change) and drove out to Steveston for a nice visit with Oma and Opa.
Monica and I had been getting used to being "empty-nesters" before she got sick. The house seemed pretty empty tonight with both Jesse and Marley gone.
Monica and I were alone today. Ingo had taken Marley for a re-write of her MCAT in an effort to better her score. I came home from work a bit early and barbequed a small fillet of salmon. We had dinner early (for a change) and drove out to Steveston for a nice visit with Oma and Opa.
Monica and I had been getting used to being "empty-nesters" before she got sick. The house seemed pretty empty tonight with both Jesse and Marley gone.
Thursday, September 1, 2011
Wednesday, August 31, 2011
Wednesday, August 31, 2011
(posted by Greg)
At InspireHealth they advise us not to beat ourselves up too much if we occasionally slip off our nutritional plan as long as you get back on it. I had to work a little later than I have been and didn't have time to plan or prepare dinner. So, we all slipped a bit and ordered Panago Pizza for the first time in many months. I think our taste buds are changing. While we enjoyed the pizza, it didn't taste as good as I had been imagining it.
As I think I mentioned in an earlier blog, Marley and I are part of a caregiver's study being carried out by UBC. I am in my second round with them. So, I had my blood pressure and interview on Tuesday. I am having to take saliva samples 6 times a day for the next 3 days (they measure stress somehow this way) and keep a sleep log.I also have to wear a special watch which they use to record some data about how I am sleeping.
(posted by Greg)
At InspireHealth they advise us not to beat ourselves up too much if we occasionally slip off our nutritional plan as long as you get back on it. I had to work a little later than I have been and didn't have time to plan or prepare dinner. So, we all slipped a bit and ordered Panago Pizza for the first time in many months. I think our taste buds are changing. While we enjoyed the pizza, it didn't taste as good as I had been imagining it.
As I think I mentioned in an earlier blog, Marley and I are part of a caregiver's study being carried out by UBC. I am in my second round with them. So, I had my blood pressure and interview on Tuesday. I am having to take saliva samples 6 times a day for the next 3 days (they measure stress somehow this way) and keep a sleep log.I also have to wear a special watch which they use to record some data about how I am sleeping.
Tuesday, August 30, 2011
(posted by Greg)
I realize that I keep saying that we have had another quiet day in Greinerville. But, we are in a time when there is not a lot of activity. Basically, Monica and I are waiting for her blood to get better and for her to get some more energy. Marley is studying, Jesse is back to his second year in medical school at UBC and moved into his own place again. And, I am trying to work more right now so that I will be more able to travel or spend time with Monica in the Fall As she feels now, Monica does not feel like undertaking any travel etc. so it will probably be October at least before we can plan anything. I have been encouraging Monica to think more about what she might like to do this Fall.
However, I don't want to give the wrong impression. Monica seems to be quite happy and is having some close times with the family.
Tonight my cousin Bob and his wife, Mary, dropped in for nice visit. They are on their way to Hawaii.
I realize that I keep saying that we have had another quiet day in Greinerville. But, we are in a time when there is not a lot of activity. Basically, Monica and I are waiting for her blood to get better and for her to get some more energy. Marley is studying, Jesse is back to his second year in medical school at UBC and moved into his own place again. And, I am trying to work more right now so that I will be more able to travel or spend time with Monica in the Fall As she feels now, Monica does not feel like undertaking any travel etc. so it will probably be October at least before we can plan anything. I have been encouraging Monica to think more about what she might like to do this Fall.
However, I don't want to give the wrong impression. Monica seems to be quite happy and is having some close times with the family.
Tonight my cousin Bob and his wife, Mary, dropped in for nice visit. They are on their way to Hawaii.
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