(posted by Greg)
Yesterday was a sad day for Monica and her family. Her father's condition took a sudden turn for the worse and he passed away yesterday afternoon. We spent the afternoon and evening with her mom and brother.
At some point I will write more about Opa. For now: He could be stubborn and difficult but he was a good, generous and hard-working man who loved his family and friends. A good father-in-law and grandfather, he always seemed to have a soft spot for Monica. She will miss him now.
Friday, December 30, 2011
Wednesday, December 28, 2011
Wednesday, December 28, 2011
(posted by Greg)
Our family had a nice Christmas.
First, Daniel, his wife (Seanne) and daughter (Mollie) came to Vancouver for Xmas. Marley and I drove to Seatac and picked them up on the 22nd. Monica did not want to come (because of health insurance complications) and she stayed home with Jesse (who moved home for the holidays after his last exam.) Marley and I had a nice drive to Seattle. The weather was great, we (for once) were not in a rush (actually drove the Chuckanut from Bellingham to Burlington) and had some good one-on-one time to talk about things.
Mollie changed the tone in our house almost immediately. She will be 4 in February and is at a very precious age. She is like a tonic as she is really into and enjoying all the Xmas traditions. So, we had a great Xmas Eve and Christmas! Ingo was able to bring Oma to our house for Xmas dinner (Opa was not up to coming as he continues to recuperate) and we a great meal. Santa's helper (Marley) had done a great job of making sure that there were lots of good gifts under the tree for everyone. Everyone pitched in and helped with the cooking (and the dish-washing which seems to accompany Xmas). And, in case Christmas, its memories and traditions did not evoke enough emotions, Monica had Daniel buy us a device for converting our VHS tapes to digital. So, we have been having fun looking at some of our old family videos. (Did I really have red hair and so much of it?)
On the evening of Boxing Day, Marley left for a short visit to South Dakota where her boyfriend Ross is home from Purdue. She is really looking forward to the visit. She will drive back to Purdue with Ross and then fly home from Chicago on January 5th.
Monica has enjoyed the holidays. She really enjoys having her kids around and has been pretty game (i.e. yesterday she went to to aquarium with Jesse, his girlfriend, Sydney, and Mollie and used one of the wheel chairs which they have available.) I watch her a lot to see if I can detect any positive changes from the treatments or negative changes from the tumour's growth. At this point, I am not sure if there have been any big changes in the last 10 days - she still has little strength on her right side and so is finding it hard to walk and hard to use her right arm if any gripping strength is required. While I find that it really bothers me to see her have to struggle, she doesn't complain or whine about it and, when asked how she is doing still says "fine".
Later today we go to the Cancer Agency for the 2nd Bev treatment. After that, her next series of appointments and treatments are scheduled for the 10th and 11th of January.
Monica
Our family had a nice Christmas.
First, Daniel, his wife (Seanne) and daughter (Mollie) came to Vancouver for Xmas. Marley and I drove to Seatac and picked them up on the 22nd. Monica did not want to come (because of health insurance complications) and she stayed home with Jesse (who moved home for the holidays after his last exam.) Marley and I had a nice drive to Seattle. The weather was great, we (for once) were not in a rush (actually drove the Chuckanut from Bellingham to Burlington) and had some good one-on-one time to talk about things.
Mollie changed the tone in our house almost immediately. She will be 4 in February and is at a very precious age. She is like a tonic as she is really into and enjoying all the Xmas traditions. So, we had a great Xmas Eve and Christmas! Ingo was able to bring Oma to our house for Xmas dinner (Opa was not up to coming as he continues to recuperate) and we a great meal. Santa's helper (Marley) had done a great job of making sure that there were lots of good gifts under the tree for everyone. Everyone pitched in and helped with the cooking (and the dish-washing which seems to accompany Xmas). And, in case Christmas, its memories and traditions did not evoke enough emotions, Monica had Daniel buy us a device for converting our VHS tapes to digital. So, we have been having fun looking at some of our old family videos. (Did I really have red hair and so much of it?)
On the evening of Boxing Day, Marley left for a short visit to South Dakota where her boyfriend Ross is home from Purdue. She is really looking forward to the visit. She will drive back to Purdue with Ross and then fly home from Chicago on January 5th.
Monica has enjoyed the holidays. She really enjoys having her kids around and has been pretty game (i.e. yesterday she went to to aquarium with Jesse, his girlfriend, Sydney, and Mollie and used one of the wheel chairs which they have available.) I watch her a lot to see if I can detect any positive changes from the treatments or negative changes from the tumour's growth. At this point, I am not sure if there have been any big changes in the last 10 days - she still has little strength on her right side and so is finding it hard to walk and hard to use her right arm if any gripping strength is required. While I find that it really bothers me to see her have to struggle, she doesn't complain or whine about it and, when asked how she is doing still says "fine".
Later today we go to the Cancer Agency for the 2nd Bev treatment. After that, her next series of appointments and treatments are scheduled for the 10th and 11th of January.
Monica
Tuesday, December 20, 2011
Tuesday, December 20, 2011
(posted by Greg)
Like everyone else, our home seems busy this time of year. We are squeezing in some cooking, shopping and house cleaning between our tours of B.C.'s health care facilities. I appreciate more than ever how lucky I am that Marley is able to be at home. Because she is with Monica, I am able to look after some of the year-end things that I have to do at work. Marley chauffers Monica around each day and makes sure that Monica doesn't try to do too much. It is a big help.
In the last week, Marley has taken Monica shopping with her. Walking is quite hard for Monica but, fortunately, she is not too proud to use a wheel chair and so they have been able to get quite a bit done. I think that they are having a great mother-daughter time together as well. Both Monica and Marley are already more appreciative of what handicapped people need to cope with as they do their everyday activities.
One of our family's Xmas traditions is to have a pork pie for breakfast on Xmas morning. On Friday night many of my family came to our house and we spent the evening preparing the pies for everyone. It was a special time as we visited and snacked (and yes did some work) together. This is the 3rd or 4th year we have gotten together to prepare the pies and it is becoming a tradition in itself. Because it was quite relaxing, I think Monica enjoyed it quite a bit too.
On Saturday, we tended to some chores and had a good visit with Oma (and her sister who was also visiting). She is back from the hospital and seemed pretty good.. Ingo came by Saturday night and had dinner with us. I made some meat loafs for the freezer on Saturday night.
After more chores and shopping on Sunday, I made chilli for the freezer while Monica and Marley went to the latest "Twilight" movie.
On Monday Monica and I visited Opa in Richmond Hospital while Marley shopped. He is doing much better and ate all of the chilli which I smuggled in for him (although apparently it needs more spice!). I think the chilli must have helped as we have learned that he is going to be going home at last (6 weeks after going in for day surgery). Ingo is making arrangements with the care home and Fraser Health for additional care for him (with bathing and changing dressings etc.). It will be good to have both Oma and Opa back in the same faciilty again.
Jesse finished his exams yesterday and has come home for the holidays. We are looking forward to being together this holiday season. Daniel, Seanne and Mollie arrive on Thursday night.
Like everyone else, our home seems busy this time of year. We are squeezing in some cooking, shopping and house cleaning between our tours of B.C.'s health care facilities. I appreciate more than ever how lucky I am that Marley is able to be at home. Because she is with Monica, I am able to look after some of the year-end things that I have to do at work. Marley chauffers Monica around each day and makes sure that Monica doesn't try to do too much. It is a big help.
In the last week, Marley has taken Monica shopping with her. Walking is quite hard for Monica but, fortunately, she is not too proud to use a wheel chair and so they have been able to get quite a bit done. I think that they are having a great mother-daughter time together as well. Both Monica and Marley are already more appreciative of what handicapped people need to cope with as they do their everyday activities.
One of our family's Xmas traditions is to have a pork pie for breakfast on Xmas morning. On Friday night many of my family came to our house and we spent the evening preparing the pies for everyone. It was a special time as we visited and snacked (and yes did some work) together. This is the 3rd or 4th year we have gotten together to prepare the pies and it is becoming a tradition in itself. Because it was quite relaxing, I think Monica enjoyed it quite a bit too.
On Saturday, we tended to some chores and had a good visit with Oma (and her sister who was also visiting). She is back from the hospital and seemed pretty good.. Ingo came by Saturday night and had dinner with us. I made some meat loafs for the freezer on Saturday night.
After more chores and shopping on Sunday, I made chilli for the freezer while Monica and Marley went to the latest "Twilight" movie.
On Monday Monica and I visited Opa in Richmond Hospital while Marley shopped. He is doing much better and ate all of the chilli which I smuggled in for him (although apparently it needs more spice!). I think the chilli must have helped as we have learned that he is going to be going home at last (6 weeks after going in for day surgery). Ingo is making arrangements with the care home and Fraser Health for additional care for him (with bathing and changing dressings etc.). It will be good to have both Oma and Opa back in the same faciilty again.
Jesse finished his exams yesterday and has come home for the holidays. We are looking forward to being together this holiday season. Daniel, Seanne and Mollie arrive on Thursday night.
Thursday, December 15, 2011
Wednesday, December 14, 2011
(posted by Greg)
Monica had her first Bev treatment today. The procedure is pretty simple. These treatments along with blood transfusions and IV chemotherapy are administered in a separate section of the Cancer Agency. Monica (along with Marley and I) were put in a small small room which can accommodate 4 patients at a time. Monica sits in a very comfortable chair and receives the treatment by infusion into her blood. The whole process took about 90 minutes. Monica was very comfortable and had no problems with the treatment. Once again the staff at the Cancer Agency were exceptional.
I am really hoping that the Bev will do its job. We are noticing that the tumour is affecting her more and more now. The effects seem to be accelerating. Her strength etc is quite a bit different now than it was two weeks or even one week ago. I am finding it hard to see her struggle with some of these mobility issues and more than a little scared for her. Fortunately, she continues to be calm and to have a good attitude.
Monica had her first Bev treatment today. The procedure is pretty simple. These treatments along with blood transfusions and IV chemotherapy are administered in a separate section of the Cancer Agency. Monica (along with Marley and I) were put in a small small room which can accommodate 4 patients at a time. Monica sits in a very comfortable chair and receives the treatment by infusion into her blood. The whole process took about 90 minutes. Monica was very comfortable and had no problems with the treatment. Once again the staff at the Cancer Agency were exceptional.
I am really hoping that the Bev will do its job. We are noticing that the tumour is affecting her more and more now. The effects seem to be accelerating. Her strength etc is quite a bit different now than it was two weeks or even one week ago. I am finding it hard to see her struggle with some of these mobility issues and more than a little scared for her. Fortunately, she continues to be calm and to have a good attitude.
Tuesday, December 13, 2011
Tuesday, December 13, 2011
(posted by Greg)
Monica got called today by the Cancer Agency. Her first Bev infusion is scheduled for tomorrow. We are glad that it is happening this quickly and hopeful that it will stop the tumour for a while and give her some relief from the symptoms. It is becoming more and more obvious that she is losing strength on her right side: she has a marked limp,her right foot drags a bit and she is not able to use her right hand for anything requiring strength.
The Cancer Agency had referred us to the local Home Care providers and we had our first visit from the nurse. She outlined what services are available to us when and if we need it. Basically, we would be able to get 4 hours of nursing care per day (in chunks of time of our choice). The nurse is going to have an occupational therapist visit us to make recommendations as to how we can make sure our house is safe for Monica while she is walking and usable if she needs to use a wheelchair in the future. She is also going to have a physiotherapist see us. It may be that a brace on Monica's right foot would make it easier for her to walk and less likely to trip. The nurse was very nice and I must say that I am generally impressed with what our health care system can do when it works well (which is what seems to be happening for us!).
I continue to be impressed by Monica's attitude. While it bothers her to have the strength on her right side affect her mobility, she doesn't let it get her down. So far she continues to take it all in stride and to be able to find the humour in some of the situations: i.e. she laughed with us all when we referred to some decision as a "no brainer" and ie. when visiting Opa tonight, her and Marley decided to take advantage of an empty wheelchair by the hospital door. It made me feel sad to see her using the wheelchair but when Marley started pushing her Monica let out a happy "Whee!"
Some news on the other medical fronts as well -Oma was released from the Langley Hospital today and returned to her care home - the social worker from the Richmond hospital called about Opa today so I think they will want to move him from the hospital soon (although he is not up to full speed yet and probably can't yet go back to the independent living section of the care home that he was in before his operation.)
Monica got called today by the Cancer Agency. Her first Bev infusion is scheduled for tomorrow. We are glad that it is happening this quickly and hopeful that it will stop the tumour for a while and give her some relief from the symptoms. It is becoming more and more obvious that she is losing strength on her right side: she has a marked limp,her right foot drags a bit and she is not able to use her right hand for anything requiring strength.
The Cancer Agency had referred us to the local Home Care providers and we had our first visit from the nurse. She outlined what services are available to us when and if we need it. Basically, we would be able to get 4 hours of nursing care per day (in chunks of time of our choice). The nurse is going to have an occupational therapist visit us to make recommendations as to how we can make sure our house is safe for Monica while she is walking and usable if she needs to use a wheelchair in the future. She is also going to have a physiotherapist see us. It may be that a brace on Monica's right foot would make it easier for her to walk and less likely to trip. The nurse was very nice and I must say that I am generally impressed with what our health care system can do when it works well (which is what seems to be happening for us!).
I continue to be impressed by Monica's attitude. While it bothers her to have the strength on her right side affect her mobility, she doesn't let it get her down. So far she continues to take it all in stride and to be able to find the humour in some of the situations: i.e. she laughed with us all when we referred to some decision as a "no brainer" and ie. when visiting Opa tonight, her and Marley decided to take advantage of an empty wheelchair by the hospital door. It made me feel sad to see her using the wheelchair but when Marley started pushing her Monica let out a happy "Whee!"
Some news on the other medical fronts as well -Oma was released from the Langley Hospital today and returned to her care home - the social worker from the Richmond hospital called about Opa today so I think they will want to move him from the hospital soon (although he is not up to full speed yet and probably can't yet go back to the independent living section of the care home that he was in before his operation.)
Saturday, December 10, 2011
Saturday, December 10, 2011
(posted by Greg)
I have found that my sleeping pattern has been affected by what is happening in our lives. I go to sleep quickly and sleep well but, if something wakes me up, my mind starts going and I can't get back to sleep. So..I am taking this opportunity to update the blog a bit early this Saturday morning.
Today, is our 28th wedding anniversary. We don't have anything special planned but Monica's brother is going to cook dinner for us. We will probably try to visit both Oma and Opa today. Monica and Marley saw Opa yesterday and report that he was maybe the best that he's been yet. We are still hoping that he will not have to be in the hospital for Xmas but the Dr. indicated that he may be first placed in a sort of "transitional" place.
Oma is currently in Langley hospital. They have had some success with reducing the amount of fluids in her so that she is more comfortable. Apparently one of her arms is quite swollen and red, so they are looking for other causes for that. She seems to be getting good care. We are hopeful that she will be able to go back to the care facility as well. Both her and Opa are also getting lots of attention and support from the family of Oma's sister.
Monica and I had a busy week. For many years one of my clients/friends has invited us for dinner at this time of year. Monica , Marley and I were able to join them again on Wednesday night and had a nice evening. On Thursday, my office had its staff party. Monica and Marley came as well and Monica had a chance to see everyone who she had been working with for the past few years. On Wednesday, our friends Liz and Tony were able to visit Monica too.
We haven't heard yet when the new treatments with Bev will start. I expect to hear from the Cancer Agency early in the new week. The Cancer Agency has already made a referral for us to the local home nursing people -we meet them on Monday. At the moment, Monica is doing well and we really don't need any nursing care at home. However, we want to make the connection with them so that we are prepared should the need arise. (This part of the process is like getting a splash of cold water. It really drives home again some of the unpleasant things that we are going to have to cope with.)
The news from last Tuesday was pretty sobering. We have had some serious talks and tender moments as we reflect on all of this. Monica's spirits continue to be pretty good. (In some ways better than mine as my tear ducts are acting up quite a bit.) Twice the other day I happened to catch a glimpse of her in an unguarded moment. On one occassion she was talking to Daniel on Skype and on another occassion Marley was tucking Monica into bed and saying good night. I was really pleased to see how happy Monica looked at those moments. A friend suggested that I should be keeping a camera handy for moments like this and I think I may have to take that advice.
I have found that my sleeping pattern has been affected by what is happening in our lives. I go to sleep quickly and sleep well but, if something wakes me up, my mind starts going and I can't get back to sleep. So..I am taking this opportunity to update the blog a bit early this Saturday morning.
Today, is our 28th wedding anniversary. We don't have anything special planned but Monica's brother is going to cook dinner for us. We will probably try to visit both Oma and Opa today. Monica and Marley saw Opa yesterday and report that he was maybe the best that he's been yet. We are still hoping that he will not have to be in the hospital for Xmas but the Dr. indicated that he may be first placed in a sort of "transitional" place.
Oma is currently in Langley hospital. They have had some success with reducing the amount of fluids in her so that she is more comfortable. Apparently one of her arms is quite swollen and red, so they are looking for other causes for that. She seems to be getting good care. We are hopeful that she will be able to go back to the care facility as well. Both her and Opa are also getting lots of attention and support from the family of Oma's sister.
Monica and I had a busy week. For many years one of my clients/friends has invited us for dinner at this time of year. Monica , Marley and I were able to join them again on Wednesday night and had a nice evening. On Thursday, my office had its staff party. Monica and Marley came as well and Monica had a chance to see everyone who she had been working with for the past few years. On Wednesday, our friends Liz and Tony were able to visit Monica too.
We haven't heard yet when the new treatments with Bev will start. I expect to hear from the Cancer Agency early in the new week. The Cancer Agency has already made a referral for us to the local home nursing people -we meet them on Monday. At the moment, Monica is doing well and we really don't need any nursing care at home. However, we want to make the connection with them so that we are prepared should the need arise. (This part of the process is like getting a splash of cold water. It really drives home again some of the unpleasant things that we are going to have to cope with.)
The news from last Tuesday was pretty sobering. We have had some serious talks and tender moments as we reflect on all of this. Monica's spirits continue to be pretty good. (In some ways better than mine as my tear ducts are acting up quite a bit.) Twice the other day I happened to catch a glimpse of her in an unguarded moment. On one occassion she was talking to Daniel on Skype and on another occassion Marley was tucking Monica into bed and saying good night. I was really pleased to see how happy Monica looked at those moments. A friend suggested that I should be keeping a camera handy for moments like this and I think I may have to take that advice.
Tuesday, December 6, 2011
Tuesday, December 6, 2011
(posted by Greg)
It has been a couple of busy days. But before writing anything about that (maybe in a follow-up blog), I want to pass along that Monica had an MRI today and a follow-up meeting with the oncologist. The Cancer Agency expedited her MRI which had been scheduled for the 13th and the meeting with the oncologist which had been scheduled for the 20th when I told them that her symptoms were getting worse. (Her limp has quickly gotten worse, her balance is affected and she has some weakness on the right side.).
Unfortunately, the news is not good. What the October MRI detected is in fact the tumour and it has grown since then. The tumour is quite "deep" in the brain. I am have not mastered the technical details but it is near the internal capsule (which, I think, is just above the brain stem and where the motor fibers come together and go from the brain to the nervous system). Monica's right side motor functions are affected because the tumour puts pressure on that area.
According to the oncologist, surgery is not an option because of the location of the tumour. More radiation is likely not an option because this area of the brain had likely been included in the original treatment (this is going to be verified with the radiation oncologist). More chemotherapy is also not an option because of how Monica's bone marrow has reacted to the chemotherapy. Basically, the Dr. indicated that the only good option is a drug called Bevacizumab ("Bev").
The growth of primary tumours to larger than a few millimeters requires the recruitment of blood vessels and vascular cells to support the tumour's metabolic requirements. A critical element in the growth of primary tumours is the "angiogenic switch": the ability of the tumour to promote the formation of new capillaries from preexisting host vessels. Bev is a drug which targets angiogenesis. It is administered intravenously as a 30 to 90 minute infusion every two weeks. It has some side effects (high blood pressure) and there is a 5% risk of serious complications (stroke, clots etc).
Prior to this meeting with the oncologist, Monica was not sure whether she wanted to take this drug. However, it quickly became apparent that there are not a lot of treatment options, Monica is "bothered" by the weakness she is already experiencing and the prognosis without treatment is not very good (basically right-side paralysis in 6 to 8 weeks with worse to follow).
I was really proud of how Monica handled the meeting (probably better than me- remember the genetically deficient tear-ducts). She herself asked all of the right questions, quickly analyzed the situation and decided to take the Bev treatment. The Dr. indicated that most patients taking Bev react well to it and feel good (not nauseous as with the chemo). The hope is that it will significantly slow down the growth of the tumour, that it will give some relief from the symptoms and that it will,generally, give some better quality of life while it works.
Monica had the blood work etc done today so that she can start the Bev treatment right away. It may take a few days for the treatments to start as there is quite a demand on the center's facilities for transfusions/infusions and the people needing are triaged for priority.
We have all been worrying about the symptoms. It is funny but there is a sense of relief from getting the actual diagnosis (even though it is bad)- I think it is being reliefed of some of the worrying and having something specific to do. Monica is bearing up well and still has the ability to laugh with us at some of the silly things that happen.
It has been a couple of busy days. But before writing anything about that (maybe in a follow-up blog), I want to pass along that Monica had an MRI today and a follow-up meeting with the oncologist. The Cancer Agency expedited her MRI which had been scheduled for the 13th and the meeting with the oncologist which had been scheduled for the 20th when I told them that her symptoms were getting worse. (Her limp has quickly gotten worse, her balance is affected and she has some weakness on the right side.).
Unfortunately, the news is not good. What the October MRI detected is in fact the tumour and it has grown since then. The tumour is quite "deep" in the brain. I am have not mastered the technical details but it is near the internal capsule (which, I think, is just above the brain stem and where the motor fibers come together and go from the brain to the nervous system). Monica's right side motor functions are affected because the tumour puts pressure on that area.
According to the oncologist, surgery is not an option because of the location of the tumour. More radiation is likely not an option because this area of the brain had likely been included in the original treatment (this is going to be verified with the radiation oncologist). More chemotherapy is also not an option because of how Monica's bone marrow has reacted to the chemotherapy. Basically, the Dr. indicated that the only good option is a drug called Bevacizumab ("Bev").
The growth of primary tumours to larger than a few millimeters requires the recruitment of blood vessels and vascular cells to support the tumour's metabolic requirements. A critical element in the growth of primary tumours is the "angiogenic switch": the ability of the tumour to promote the formation of new capillaries from preexisting host vessels. Bev is a drug which targets angiogenesis. It is administered intravenously as a 30 to 90 minute infusion every two weeks. It has some side effects (high blood pressure) and there is a 5% risk of serious complications (stroke, clots etc).
Prior to this meeting with the oncologist, Monica was not sure whether she wanted to take this drug. However, it quickly became apparent that there are not a lot of treatment options, Monica is "bothered" by the weakness she is already experiencing and the prognosis without treatment is not very good (basically right-side paralysis in 6 to 8 weeks with worse to follow).
I was really proud of how Monica handled the meeting (probably better than me- remember the genetically deficient tear-ducts). She herself asked all of the right questions, quickly analyzed the situation and decided to take the Bev treatment. The Dr. indicated that most patients taking Bev react well to it and feel good (not nauseous as with the chemo). The hope is that it will significantly slow down the growth of the tumour, that it will give some relief from the symptoms and that it will,generally, give some better quality of life while it works.
Monica had the blood work etc done today so that she can start the Bev treatment right away. It may take a few days for the treatments to start as there is quite a demand on the center's facilities for transfusions/infusions and the people needing are triaged for priority.
We have all been worrying about the symptoms. It is funny but there is a sense of relief from getting the actual diagnosis (even though it is bad)- I think it is being reliefed of some of the worrying and having something specific to do. Monica is bearing up well and still has the ability to laugh with us at some of the silly things that happen.
Friday, December 2, 2011
Friday, December 2, 2011
(posted by Greg)
A friend recently asked me about the "comments" section. It seems that, for some reason, we are not receiving the comments that people have been posting for the last few months. So, if you have been making comments and we have not responded in any way, it is not because we are ignoring you. We will play around with the blog a bit and see if we can fix it.
We have now been told that Monica's follow-up MRI is scheduled for December 13th. The visit with the oncologist is set for December 20th. I am glad that they are coming soon because of the right-side weakness that Monica is now demonstrating.
If the MRI shows that the tumour is growing, I think that the oncologist will be recommending some antiangiogenic therapy and will prescribe a drug called bevacizumab. We are going to try to read a bit about this drug before the meeting with the oncologist so that we have some understanding of the side effects etc.
A friend recently asked me about the "comments" section. It seems that, for some reason, we are not receiving the comments that people have been posting for the last few months. So, if you have been making comments and we have not responded in any way, it is not because we are ignoring you. We will play around with the blog a bit and see if we can fix it.
We have now been told that Monica's follow-up MRI is scheduled for December 13th. The visit with the oncologist is set for December 20th. I am glad that they are coming soon because of the right-side weakness that Monica is now demonstrating.
If the MRI shows that the tumour is growing, I think that the oncologist will be recommending some antiangiogenic therapy and will prescribe a drug called bevacizumab. We are going to try to read a bit about this drug before the meeting with the oncologist so that we have some understanding of the side effects etc.
Tuesday, November 29, 2011
It is health that is real wealth and not pieces of gold and silver. -Mohandas Gandhi
Hello all,
This time its Marley checking in and I figure its about time I gave a brief update.
First, I should acknowledge that its been a difficult time blogging for my dad as our main desktop at home has crashed. He now attempts to update on a touch pad (which is hilarious to watch since his blood pressure shoots through the roof) or on our ancient and very sluggish computer. In addition to these difficulties, its sometimes hard to know what to write as we have gotten into a routine which often involves visiting oma and opa.
Second, it was brought to our attention that some readers were having difficulties commenting.I have tried to fiddle with the settings hoping to fix the problem. I think I have made it possible for readers who don't have a google account to now comment.
Thirdly, as Christmas approaches I think we are all feeling a mixture of emotions. I for one am getting into the Christmas spirit and can't wait to have the whole family together (and its still only Novemeber!). This will be the first year since Daniel and Seanne have been married that we get them for Christmas! I can't wait to see Mollie running down the stairs to see if Santa came! I am also excited because I will get to jet away and see Ross and his family for a bit after Christmas.
Along with all the excitement comes anxiety of our next MRI and appointment with the DR. Its hard for me to say if I think moms getting worse. Since I spend so much time with her everyday, I think I could start to miss little signs. There is also the possibility that these little signs could be delayed effects of surgery/chemo/ or radiation on her brain and stress my just be adding to the problem. I prefer to stay in my little bubble hoping for the best. Either way, I think we are all starting to think about what next month is going to bring. On a fun side note: Dad's tear-ducts are also preparing for the holiday season so if you happen to ask him how he is doing make sure you have kleenex or extra-durable paper towel to offer him.
Finally, I little piece of wisdom...take some time to appreciate your body. Its not until you see peoples bodies failing them that you realize how horrible it can be and how lucky we are. So don't take your health for granted and if you have until now, its never to late to make a change.
This time its Marley checking in and I figure its about time I gave a brief update.
First, I should acknowledge that its been a difficult time blogging for my dad as our main desktop at home has crashed. He now attempts to update on a touch pad (which is hilarious to watch since his blood pressure shoots through the roof) or on our ancient and very sluggish computer. In addition to these difficulties, its sometimes hard to know what to write as we have gotten into a routine which often involves visiting oma and opa.
Second, it was brought to our attention that some readers were having difficulties commenting.I have tried to fiddle with the settings hoping to fix the problem. I think I have made it possible for readers who don't have a google account to now comment.
Thirdly, as Christmas approaches I think we are all feeling a mixture of emotions. I for one am getting into the Christmas spirit and can't wait to have the whole family together (and its still only Novemeber!). This will be the first year since Daniel and Seanne have been married that we get them for Christmas! I can't wait to see Mollie running down the stairs to see if Santa came! I am also excited because I will get to jet away and see Ross and his family for a bit after Christmas.
Along with all the excitement comes anxiety of our next MRI and appointment with the DR. Its hard for me to say if I think moms getting worse. Since I spend so much time with her everyday, I think I could start to miss little signs. There is also the possibility that these little signs could be delayed effects of surgery/chemo/ or radiation on her brain and stress my just be adding to the problem. I prefer to stay in my little bubble hoping for the best. Either way, I think we are all starting to think about what next month is going to bring. On a fun side note: Dad's tear-ducts are also preparing for the holiday season so if you happen to ask him how he is doing make sure you have kleenex or extra-durable paper towel to offer him.
Finally, I little piece of wisdom...take some time to appreciate your body. Its not until you see peoples bodies failing them that you realize how horrible it can be and how lucky we are. So don't take your health for granted and if you have until now, its never to late to make a change.
Sunday, November 27, 2011
Sunday, November 27 2011
(posted by Greg)
Yesterday, Monica, Marley and I visited both Oma and Opa. We spent a couple of hours with Oma in Langley- played some cards with her and visited quite a bit. She is retaining more fluid again and is quit uncofortable. Ingo takes her to see the Dr. tomorrow. I am afraid however that there is not much more that they can do for her. Oma, on some level at least, feels, I am sure, has reached the same conclusion. I don't think that her "get up and go" personality was meant for the kind of life that she has now.
Opa is not making a lot of progress. Ingo had a bit of a run-in with one of the nurses yesterday. I guess that she didn't seem to have any idea that they were supposed to be getting Opa to move as much as possible (as we had been told the previous day by both the physio and the Dr. that it was necessary). Opa seems to continue to be in pain and only wants to rest.
Monica, Marley and I treated ourselves to some Chinese food and a Xmas movie last night when we finally got home.
We had a nice breakfast today and are planning the day as I write this blog Marley has had Monica doing exercises the past week. I participated this morning and can't help but notice that Monica seems to be worse/weaker on her right side. She even has trouble with her right hand doing some of the simpler tai chi warm-ups. This is a bit worrisome
Yesterday, Monica, Marley and I visited both Oma and Opa. We spent a couple of hours with Oma in Langley- played some cards with her and visited quite a bit. She is retaining more fluid again and is quit uncofortable. Ingo takes her to see the Dr. tomorrow. I am afraid however that there is not much more that they can do for her. Oma, on some level at least, feels, I am sure, has reached the same conclusion. I don't think that her "get up and go" personality was meant for the kind of life that she has now.
Opa is not making a lot of progress. Ingo had a bit of a run-in with one of the nurses yesterday. I guess that she didn't seem to have any idea that they were supposed to be getting Opa to move as much as possible (as we had been told the previous day by both the physio and the Dr. that it was necessary). Opa seems to continue to be in pain and only wants to rest.
Monica, Marley and I treated ourselves to some Chinese food and a Xmas movie last night when we finally got home.
We had a nice breakfast today and are planning the day as I write this blog Marley has had Monica doing exercises the past week. I participated this morning and can't help but notice that Monica seems to be worse/weaker on her right side. She even has trouble with her right hand doing some of the simpler tai chi warm-ups. This is a bit worrisome
Friday, November 25, 2011
Friday, November 28, 2011
(posted by Greg)
I almost can't believe how quickly the weeks are flying by. More of the same for us. I have been working quite a bit and quite hard. We have all been busy visiting Oma in Langley and Opa at Richmond Hospital.
Opa is still in the hospital. The dr. has asked us to try to motivate him to work harder at moving around. We will have to see how that goes but the Dr. emphasized that it is important for his recovery now.
Monica and Marley continue to have fun gallavanting around together - lots of smiles and laughs. Monicaès spirits continue to be good. I do think that she her right foot is getting a bit worse and she seems to be tiring more easily. I expect that the next MRI will be in about 3 weeks since we are scheduled to see the oncologist on December 21st .
I almost can't believe how quickly the weeks are flying by. More of the same for us. I have been working quite a bit and quite hard. We have all been busy visiting Oma in Langley and Opa at Richmond Hospital.
Opa is still in the hospital. The dr. has asked us to try to motivate him to work harder at moving around. We will have to see how that goes but the Dr. emphasized that it is important for his recovery now.
Monica and Marley continue to have fun gallavanting around together - lots of smiles and laughs. Monicaès spirits continue to be good. I do think that she her right foot is getting a bit worse and she seems to be tiring more easily. I expect that the next MRI will be in about 3 weeks since we are scheduled to see the oncologist on December 21st .
Sunday, November 20, 2011
Sunday, November 20, 2011
(posted by Greg)
A fairly busy but fairly routine week. I have been working a lot as I try to get ready for year-end and for some changes to our firm which will start in January. I am hoping to re-organize the way that I work so that I can work a bit less and work from home more. So the firm will be making some organizational changes to accomodate this.
The past week involved a lot of trips to the hospital and to Langley. Monica's dad is still in Richmond hospital. So far it looks like the operation on his foot has been successful. But he has had some little complications and is still in the hospital. We may have to arrange for more care for him, at least initially, when he is released from the hospital.
Monica and Marley visited Oma quite a bit as well. She is well settled into the facility but still struggles with her breathing etc.
We are starting to plan how we can celebrate Xmas with Oma and Opa and make the best of this Xmas. We will probably spend Xmas Eve with them in Langley and bring them to our house for dinner on Xmas Day.
Monica's right foot is still a concern. It seems to be getting a bit worse ( but sometimes I think it might be my imagination). I think that we are going to encourage her to take some physiotherapy to see if that will help and try to get her re-focused on doing some things for her own health. In particular, I would like to see her talk to a counsellor to make sure that she has an opportunity to express any feelings or emotions which she might be suppressing.
A fairly busy but fairly routine week. I have been working a lot as I try to get ready for year-end and for some changes to our firm which will start in January. I am hoping to re-organize the way that I work so that I can work a bit less and work from home more. So the firm will be making some organizational changes to accomodate this.
The past week involved a lot of trips to the hospital and to Langley. Monica's dad is still in Richmond hospital. So far it looks like the operation on his foot has been successful. But he has had some little complications and is still in the hospital. We may have to arrange for more care for him, at least initially, when he is released from the hospital.
Monica and Marley visited Oma quite a bit as well. She is well settled into the facility but still struggles with her breathing etc.
We are starting to plan how we can celebrate Xmas with Oma and Opa and make the best of this Xmas. We will probably spend Xmas Eve with them in Langley and bring them to our house for dinner on Xmas Day.
Monica's right foot is still a concern. It seems to be getting a bit worse ( but sometimes I think it might be my imagination). I think that we are going to encourage her to take some physiotherapy to see if that will help and try to get her re-focused on doing some things for her own health. In particular, I would like to see her talk to a counsellor to make sure that she has an opportunity to express any feelings or emotions which she might be suppressing.
Monday, November 14, 2011
Monday, November 14, 2011
(posted by Greg)
A fairly quiet weekend -a couple of visits to Oma in Langley and to Opa in Richmond hospital. Oma is about the same and Opa seems to be recuperating well. Monica is feeling ok.
A fairly quiet weekend -a couple of visits to Oma in Langley and to Opa in Richmond hospital. Oma is about the same and Opa seems to be recuperating well. Monica is feeling ok.
Friday, November 11, 2011
Friday, November 11, 2011
(posted by Greg)
For the last few days we have been kept busy by hospital visits. Opa's day surgery became problematic when they couldn't do the simple surgery on his foot and they had trouble stopping the bleeding from the attempt to do it. Eventually, they got him stabilized and decided to then proceed with the more complicated (and riskier) foot operation. (Basically, the surgeon was trying to improve the circulation to his foot. Opa has diabetes and it was beginning to look like he might lose his foot.). The surgery was risky because of Opa's other problems and (I think) that there was a risk that he might lose his foot in any event if the procedure did not work.
Monica and Marley wound up spending about 13 hours at Richmond Hospital while all this was going on and only left Opa when he was relatively stable in the ICU unit.
On Tuesday and Wednesday, it was hard to see Opa as he couldn't speak because of the breathing tubes. However, Monica and Marley went both days. Fortunately Opa seems to be pullin through and the procedure seems to be working. On Thursday he was much better and has been moved to a regular ward.
Monica and I visited Oma Wednesday night in Langley. She was a bit tired but generally seems to be doing ok in the care home. After visiting Oma, Monica and I dropped off a plate of food for Ingo who is coming down with a cold or something.
I am sure that all of this is difficult for Monica but she is holding up well. She is having the same slight problem with "catching" her left foot when she walks but otherwise seems fine. At some level, I think the extra efforts with Oma and the cooking for Ingo make her feel better because she feels like she is contributing. I am still hoping to have Monica speak with a counsellor at InspireHealth at some point to "talk through" some of these feelings as I think it will be helpful.
Last night, Marley, Monica and I had a night out and went to the Circel Craft fair at the Convention Centre. It was fun but a bit of a shock to the system to dunked into the "Christmas Season"!
For the last few days we have been kept busy by hospital visits. Opa's day surgery became problematic when they couldn't do the simple surgery on his foot and they had trouble stopping the bleeding from the attempt to do it. Eventually, they got him stabilized and decided to then proceed with the more complicated (and riskier) foot operation. (Basically, the surgeon was trying to improve the circulation to his foot. Opa has diabetes and it was beginning to look like he might lose his foot.). The surgery was risky because of Opa's other problems and (I think) that there was a risk that he might lose his foot in any event if the procedure did not work.
Monica and Marley wound up spending about 13 hours at Richmond Hospital while all this was going on and only left Opa when he was relatively stable in the ICU unit.
On Tuesday and Wednesday, it was hard to see Opa as he couldn't speak because of the breathing tubes. However, Monica and Marley went both days. Fortunately Opa seems to be pullin through and the procedure seems to be working. On Thursday he was much better and has been moved to a regular ward.
Monica and I visited Oma Wednesday night in Langley. She was a bit tired but generally seems to be doing ok in the care home. After visiting Oma, Monica and I dropped off a plate of food for Ingo who is coming down with a cold or something.
I am sure that all of this is difficult for Monica but she is holding up well. She is having the same slight problem with "catching" her left foot when she walks but otherwise seems fine. At some level, I think the extra efforts with Oma and the cooking for Ingo make her feel better because she feels like she is contributing. I am still hoping to have Monica speak with a counsellor at InspireHealth at some point to "talk through" some of these feelings as I think it will be helpful.
Last night, Marley, Monica and I had a night out and went to the Circel Craft fair at the Convention Centre. It was fun but a bit of a shock to the system to dunked into the "Christmas Season"!
Monday, November 7, 2011
Monday november7,2011
A relatively quiet weekend for the Greiners. A number of chores on Saturday were followed by a trip to Langley to visit Oma and Opa who were both ok. On Saturday evening Monica and I went to a concert with my niece,Jan. We saw the April Verch Band and really enjoyed it.
Sunday was spent around home. I worked a bit. Monica and Marley brought Opa to our house to spend the night. He is scheduled for some day surgery to help improve the circulation to his foot.
Opa's surgery became complicated and the surgeon had to do a riskier procedure. Opa spent most of the day in surgery but made it through ok. He is in the ICU tonight and we are keeping him in our prayers.
Sunday was spent around home. I worked a bit. Monica and Marley brought Opa to our house to spend the night. He is scheduled for some day surgery to help improve the circulation to his foot.
Opa's surgery became complicated and the surgeon had to do a riskier procedure. Opa spent most of the day in surgery but made it through ok. He is in the ICU tonight and we are keeping him in our prayers.
Thursday, November 3, 2011
Thursday, November 3,2011
(posted by Greg)
Monica and Marley had a long walk today to do some banking and chores. (I think they got lots exercise -judging by how much they each ate at supper). Monica's right leg is "catching" a bit when she walks and this is worrying her a bit.
Monica and Marley had a long walk today to do some banking and chores. (I think they got lots exercise -judging by how much they each ate at supper). Monica's right leg is "catching" a bit when she walks and this is worrying her a bit.
Wednesday, November 2, 2011
Wednesday, November 2, 2011
(posted by Greg)
I apologize to those who check this blog often. I have slipped out of the habit of posting daily. I wish I had a good reason (i.e. an emergency call to consult on legal issues from Stephen Harper) but, unfortuanely, I think it was a combination of being busy with routine things and being a bit lazy.
We used the weekend to get in some more visits with Oma and Opa. Oma continues to amaze me. She has now made a couple of trips to the dining room with her walker (instead of having to be taken in her wheel chair) and is settling in quite well. Opa's foot (circulation) is an issue and he will have some surgery on November 7th to see if they can improve it.
Halloween was a busy day. Monica, Marley and I attended a program put on by the Cancer Agency for patients and caregivers who have completed their treatment. Monica had a different program than Marley and I but both programs focussed on nutrition, exercise and stress reduction. Monica seemed to enjoy her program.
Marley and I enjoyed ours as well. We were given pedometers and (if exercise is one of our goals) asked to log our steps over the next month (we go back for a follow-up session on December 5th). Goal setting was one of our topics as well. This is something that I have always done/been interested in so I particularly enjoyed it and I found that I came away a bit "pumped". So I am logging my food and my exercise and on my way to being Greg. version 6.5. Marley who is already particularly good at goal setting was not quite as impressed/motivated as I was.
On Tuesday, Monica and I attended a group medical medical appointment with our Dr. at InspireHealth. This was a bit different as there were two other women ( both of whom have breast cancer ) along with Monica and I. However, the discussions (ie. how to decide between the various treatment options out there) were useful and relevant to all. Some of the discussions, related directly to Monica and were illuminating. The Dr. explained that stress can affect how symtoms are displayed and made me realize that the stress of the MRI and her parents' situation could be contributing to the little problem Monica is having with her walking. So, I plan on taking some steps to make sure that she is actually relaxing more. It also became apparent to me from the discussions that Monica feels badly that she cannot, because of her health, help her parents more at this point in time. The Dr made a point of helping her realize the importance/necessity of making her own health a priority and trying to let go of some of these feelings. I came away thinking that I will arrange for her to see one of the counsellors at the Cancer Agency or InspireHealth to help her talk/think through these feelings.
Today, Marley and Monica attended the regular Brain Tumour Support Group. Marley reports that it was useful again and that Monica seemed to get something out of it as well.
Tonight, Marley has to coach so Monica and I will likely go visit her parents.
I apologize to those who check this blog often. I have slipped out of the habit of posting daily. I wish I had a good reason (i.e. an emergency call to consult on legal issues from Stephen Harper) but, unfortuanely, I think it was a combination of being busy with routine things and being a bit lazy.
We used the weekend to get in some more visits with Oma and Opa. Oma continues to amaze me. She has now made a couple of trips to the dining room with her walker (instead of having to be taken in her wheel chair) and is settling in quite well. Opa's foot (circulation) is an issue and he will have some surgery on November 7th to see if they can improve it.
Halloween was a busy day. Monica, Marley and I attended a program put on by the Cancer Agency for patients and caregivers who have completed their treatment. Monica had a different program than Marley and I but both programs focussed on nutrition, exercise and stress reduction. Monica seemed to enjoy her program.
Marley and I enjoyed ours as well. We were given pedometers and (if exercise is one of our goals) asked to log our steps over the next month (we go back for a follow-up session on December 5th). Goal setting was one of our topics as well. This is something that I have always done/been interested in so I particularly enjoyed it and I found that I came away a bit "pumped". So I am logging my food and my exercise and on my way to being Greg. version 6.5. Marley who is already particularly good at goal setting was not quite as impressed/motivated as I was.
On Tuesday, Monica and I attended a group medical medical appointment with our Dr. at InspireHealth. This was a bit different as there were two other women ( both of whom have breast cancer ) along with Monica and I. However, the discussions (ie. how to decide between the various treatment options out there) were useful and relevant to all. Some of the discussions, related directly to Monica and were illuminating. The Dr. explained that stress can affect how symtoms are displayed and made me realize that the stress of the MRI and her parents' situation could be contributing to the little problem Monica is having with her walking. So, I plan on taking some steps to make sure that she is actually relaxing more. It also became apparent to me from the discussions that Monica feels badly that she cannot, because of her health, help her parents more at this point in time. The Dr made a point of helping her realize the importance/necessity of making her own health a priority and trying to let go of some of these feelings. I came away thinking that I will arrange for her to see one of the counsellors at the Cancer Agency or InspireHealth to help her talk/think through these feelings.
Today, Marley and Monica attended the regular Brain Tumour Support Group. Marley reports that it was useful again and that Monica seemed to get something out of it as well.
Tonight, Marley has to coach so Monica and I will likely go visit her parents.
Friday, October 28, 2011
Friday, October 28, 2011
(posted by Greg)
For the most part, it has been a quiet week since the meeting with the Oncologist. Monica and Marley have been around home or visiting Oma and Opa. I have been working quite a bit.
On Monday, Monica, Marley and I are participating in a program at the Cancer Agency. It is a program for people ( and their caregivers) who have completed active treatment. I think it will be reinforcing some of the concepts about how exercise, nutrition, goal-setting etc can help. On Tuesday, Monica has a group follow-up session at Inspire Health and on Wednesday the regular support group meets. So, we will have a busy "cancer" s schedule next week.
We will be trying to see Oma and Opa a couple of times over this weekend.
For the most part, it has been a quiet week since the meeting with the Oncologist. Monica and Marley have been around home or visiting Oma and Opa. I have been working quite a bit.
On Monday, Monica, Marley and I are participating in a program at the Cancer Agency. It is a program for people ( and their caregivers) who have completed active treatment. I think it will be reinforcing some of the concepts about how exercise, nutrition, goal-setting etc can help. On Tuesday, Monica has a group follow-up session at Inspire Health and on Wednesday the regular support group meets. So, we will have a busy "cancer" s schedule next week.
We will be trying to see Oma and Opa a couple of times over this weekend.
Tuesday, October 25, 2011
Tuesday, October 25, 2011
(posted by Greg)
Monica, Marley, Jesse and I met with the oncologist today to review the results of yesterday's MRI.The term the Dr. used was "mixed bag". Apparently, the area where the tumour had been removed looked good. However, he noticed something which could be a tumour in an area deeper in her brain which had been noticed before the radiation and which was the object of some of the radiation treatments. He wants Monica to come back in 8 weeks (this will be a Merry Xmas!) and to have another MRI at that time to see if it is growing (and how fast). Apparently, there is another drug which they might prescribe if it is a tumour. However, they will not use this drug until they know for sure what they are looking at (there is at least some chance that it could be scarring/swelling from the radiation.) because this particular drug can have serious side effects.We are supposed to monitor Monica and let him know if, in the interim, she develops any symptoms.
The Dr. examined Monica neurologically and, all in all, she seemed to do ok.
Monica took all this quite well. However, in the last few days she has had some limited re-occurrence with "catching" her right foot occasionally when she is walking. So, I think, despite her outward reaction, she is worried. (She mentioned that she thought she could notice some right side weakness when the Dr. was testing her). Later in the afternoon Monica skyped Daniel and was telling him about the visit to the the Doctor. Daniel's reaction to her explanation triggered an emotional reaction in Monica and she started to cry (something which she has not done a lot of so far). It is hard to see her cry-difficult to find the right words (or any words for that matter) or actions to console her.
As I have said before, our daily routine and Monica's present state of health "lulls" us into forgetting the nature of the struggle she is engaged in. A visit like today's is a kind of sobering reminder of that situation and the need to make sure that every day we have our priorities set correctly.
Monica, Marley, Jesse and I met with the oncologist today to review the results of yesterday's MRI.The term the Dr. used was "mixed bag". Apparently, the area where the tumour had been removed looked good. However, he noticed something which could be a tumour in an area deeper in her brain which had been noticed before the radiation and which was the object of some of the radiation treatments. He wants Monica to come back in 8 weeks (this will be a Merry Xmas!) and to have another MRI at that time to see if it is growing (and how fast). Apparently, there is another drug which they might prescribe if it is a tumour. However, they will not use this drug until they know for sure what they are looking at (there is at least some chance that it could be scarring/swelling from the radiation.) because this particular drug can have serious side effects.We are supposed to monitor Monica and let him know if, in the interim, she develops any symptoms.
The Dr. examined Monica neurologically and, all in all, she seemed to do ok.
Monica took all this quite well. However, in the last few days she has had some limited re-occurrence with "catching" her right foot occasionally when she is walking. So, I think, despite her outward reaction, she is worried. (She mentioned that she thought she could notice some right side weakness when the Dr. was testing her). Later in the afternoon Monica skyped Daniel and was telling him about the visit to the the Doctor. Daniel's reaction to her explanation triggered an emotional reaction in Monica and she started to cry (something which she has not done a lot of so far). It is hard to see her cry-difficult to find the right words (or any words for that matter) or actions to console her.
As I have said before, our daily routine and Monica's present state of health "lulls" us into forgetting the nature of the struggle she is engaged in. A visit like today's is a kind of sobering reminder of that situation and the need to make sure that every day we have our priorities set correctly.
Monday, October 24, 2011
Monday, October 24, 2011
(posted by Greg)
Marley took Monica to the B.C. Cancer Agency today for her MRI. It was nice to have the test completed. However, I can't help but be a bit nervous about the results. Monica meets with the oncologist tomorrow morning so we should learn more about what the tumour is doing (or not - hopefully).
Marley took Monica to the B.C. Cancer Agency today for her MRI. It was nice to have the test completed. However, I can't help but be a bit nervous about the results. Monica meets with the oncologist tomorrow morning so we should learn more about what the tumour is doing (or not - hopefully).
Sunday, October 23, 2011
(posted by Greg)
Not a lot to blog about for the past couple of days. I have been working quite hard. Monica has been doing well and fairly active around home. We have both spent quite a bit of time driving to see Monica's Mom and Dad.
Monica's MRI was postponed from Friday until Monday at 2:00 p.m. Our follow up with the oncologist is still scheduled for Tuesday.
We were surprised at how Oma has improved in the last week or so. She is settling into the care facility quite well and is really trying (and with some success) to get some mobility back. She had Marley take her on a short walk with her walker today and I was surprised how well she did (although it still winds her.).
Not a lot to blog about for the past couple of days. I have been working quite hard. Monica has been doing well and fairly active around home. We have both spent quite a bit of time driving to see Monica's Mom and Dad.
Monica's MRI was postponed from Friday until Monday at 2:00 p.m. Our follow up with the oncologist is still scheduled for Tuesday.
We were surprised at how Oma has improved in the last week or so. She is settling into the care facility quite well and is really trying (and with some success) to get some mobility back. She had Marley take her on a short walk with her walker today and I was surprised how well she did (although it still winds her.).
Thursday, October 20, 2011
Wednesday, October 19, 2011
(posted by Greg)
Monica and I attended an evening session of the Brain Tumour Support Group at the Cancer Agency. I am wondering if you can get "hooked" on these sessions. I find that I look forward to going to them and I am invariably moved and stimulated by them. Monica didn't feel so strongly about going but was happy to go and always seems to like the sessions.
Wednesday's session had some different attendees and was interesting from that point of view. Once again there were some moving stories and a certain "bonding" seems to take place from the sharing of those stories. I think too that everyone feels not so alone when they hear the stories of others.
When Monica was in active treatments and had something to do every day, we felt like we were doing something to combat the cancer. We realize that by following our nutrition guidelines etc we are still fighting the cancer but it is much less tangible. I think that participating in the group sessions makes us feel like we are doing something.. (This might explain why I like going?)
One of the benefits of going also is the hope that is engendered when you hear some success stories. The following is an excerpt from a newsletter that was handed out (and so is not confidential) which tells the story of a young man who was diagnosed in February 2004 with a tumour similar to Monica's:
" A week later, my family and I received the devastating news : grade 4 astrocytoma (glioblastoma), a fast growng and aggressive form of brain cancer with a poor prognosis. It was hard for us all to hear. After giving me the news about the prognosis, my surgeon...drew a survival curve explaining that although this curve represented the statistical prognosis, I was an individual and not a statistic. He said that I could be on the long-term survival end of the curve, and I wouldn't be the first person to do that . It was from this point that I made the decision to take an active role in doing whatever I could to be part of the survival end of that curve.
Treatment began a month or so after diagnosis: six weeks of radiation with concurrent temozolomide (TMZ), chemotherapy pills that looked like poison to me. I was not able to complete the chemotherapy regime because of the effects on my blood cells in the fourth week, but I thought that perhaps this was a sign that my body was very sensitive to the drug. In the fall of 2004, magnetic resonance imaging (MRI) showed that the tumour had indeed shrunk, but a year later the tumour grew back and I enrolled in a clinical trial. The clinical trial drug I was given, lapatanib, proved to be ineffective in treating brain tumours. So, I started back on TMZ treatment again for the first eight months of 2006, and thankfully, this was effective in shrinking the tumour. It has not recurred since then.
I believe that a combination of my tumour's biology and its responsiveness to treatment, but also my personal fight against the cancer, resulted in this success. My personal battle has involved meditation, exercise, prayer, art, top-notch care at BCCA and most importantly a very close network of family and friends.
This is one of the stories that gives me some hope (particularly because of the many similarities to Monica's situation).
For more information on this young man, Yaron Butterfield, see this link: www.braintumour.ca/2367/the-many-faces-of-spring-sprint
Monica and I attended an evening session of the Brain Tumour Support Group at the Cancer Agency. I am wondering if you can get "hooked" on these sessions. I find that I look forward to going to them and I am invariably moved and stimulated by them. Monica didn't feel so strongly about going but was happy to go and always seems to like the sessions.
Wednesday's session had some different attendees and was interesting from that point of view. Once again there were some moving stories and a certain "bonding" seems to take place from the sharing of those stories. I think too that everyone feels not so alone when they hear the stories of others.
When Monica was in active treatments and had something to do every day, we felt like we were doing something to combat the cancer. We realize that by following our nutrition guidelines etc we are still fighting the cancer but it is much less tangible. I think that participating in the group sessions makes us feel like we are doing something.. (This might explain why I like going?)
One of the benefits of going also is the hope that is engendered when you hear some success stories. The following is an excerpt from a newsletter that was handed out (and so is not confidential) which tells the story of a young man who was diagnosed in February 2004 with a tumour similar to Monica's:
" A week later, my family and I received the devastating news : grade 4 astrocytoma (glioblastoma), a fast growng and aggressive form of brain cancer with a poor prognosis. It was hard for us all to hear. After giving me the news about the prognosis, my surgeon...drew a survival curve explaining that although this curve represented the statistical prognosis, I was an individual and not a statistic. He said that I could be on the long-term survival end of the curve, and I wouldn't be the first person to do that . It was from this point that I made the decision to take an active role in doing whatever I could to be part of the survival end of that curve.
Treatment began a month or so after diagnosis: six weeks of radiation with concurrent temozolomide (TMZ), chemotherapy pills that looked like poison to me. I was not able to complete the chemotherapy regime because of the effects on my blood cells in the fourth week, but I thought that perhaps this was a sign that my body was very sensitive to the drug. In the fall of 2004, magnetic resonance imaging (MRI) showed that the tumour had indeed shrunk, but a year later the tumour grew back and I enrolled in a clinical trial. The clinical trial drug I was given, lapatanib, proved to be ineffective in treating brain tumours. So, I started back on TMZ treatment again for the first eight months of 2006, and thankfully, this was effective in shrinking the tumour. It has not recurred since then.
I believe that a combination of my tumour's biology and its responsiveness to treatment, but also my personal fight against the cancer, resulted in this success. My personal battle has involved meditation, exercise, prayer, art, top-notch care at BCCA and most importantly a very close network of family and friends.
This is one of the stories that gives me some hope (particularly because of the many similarities to Monica's situation).
For more information on this young man, Yaron Butterfield, see this link: www.braintumour.ca/2367/the-many-faces-of-spring-sprint
Tuesday, October 18, 2011
Tuesday, October 18, 2011
(posted by Greg)
Monica, Marley and I had flu shots at the office today. ( I was surprised that Monica would be allowed to take it because of her low immunity but it was recommended that she take it along with everyone living with her). Monica and Marley then met Ingo to have a look at some power wheelchairs for Oma and spent a good part of the afternoon with Oma and Opa. Oma, I am told was not too bad again today.
Monica needs to have her blood tested before her MRI on Friday. So, we will be visiting the lab again tomorrow. There is a special "evening" meeting of the brain tumour support group tomorrow night and I think that we will try to go.
I am not sure how I feel about the MRI. We have been in a kind of "holding pattern" for some time now and Monica has been symptom free and not doing too badly. So, it is easy to forget exactly what is going on. The MRI and the follow up meeting with the oncologist will bring us face-to-face with Monica's issues again.
Monica, Marley and I had flu shots at the office today. ( I was surprised that Monica would be allowed to take it because of her low immunity but it was recommended that she take it along with everyone living with her). Monica and Marley then met Ingo to have a look at some power wheelchairs for Oma and spent a good part of the afternoon with Oma and Opa. Oma, I am told was not too bad again today.
Monica needs to have her blood tested before her MRI on Friday. So, we will be visiting the lab again tomorrow. There is a special "evening" meeting of the brain tumour support group tomorrow night and I think that we will try to go.
I am not sure how I feel about the MRI. We have been in a kind of "holding pattern" for some time now and Monica has been symptom free and not doing too badly. So, it is easy to forget exactly what is going on. The MRI and the follow up meeting with the oncologist will bring us face-to-face with Monica's issues again.
Sunday, October 16, 2011
Sunday, October 15, 2011
(posted by Greg)
Not a lot to blog about for the past couple of days. Monica and I have made several trips to Langley to visit Oma and Opa at their care home. Oma was better today than she has been. I admire her spirit and determination. She is working hard to try to improve her mobility. She moves her feet as a form of exercise and has Marley and Jesse help her exercise her legs. She had them help her walk a bit today as well.
Opa seems to be settling in reasonably well. His feet are bothering him and Ingo is taking him to a vascular specialist tomorrow.
Not a lot to blog about for the past couple of days. Monica and I have made several trips to Langley to visit Oma and Opa at their care home. Oma was better today than she has been. I admire her spirit and determination. She is working hard to try to improve her mobility. She moves her feet as a form of exercise and has Marley and Jesse help her exercise her legs. She had them help her walk a bit today as well.
Opa seems to be settling in reasonably well. His feet are bothering him and Ingo is taking him to a vascular specialist tomorrow.
Wednesday, October 12, 2011
Wednesday, October 12, 2011
(posted by Greg)
Monica and I made another trip to visit Oma and Opa after supper. When we arrived, Oma was in a lot of discomfort. She seems to be having quite a few "panic" attacks and they seem to get worse when she is in bed and trying to sleep. I am beginning to think that it is a "physical" response to the trouble that she is having breathing.
Monica stayed with her mother and tried to help her sleep while I visited with Opa. The visit upset Monica and caused her to cry quite a bit. She didn't like to see her mother in this condition and she felt bad that her mother had to see her suffering the effects of her treatments etc.
My visit with Opa was quite good. I think he is settling in (although he seemed happy to have another visitor).
Marley returns from her visit to her boyfriend. Monica and I will be picking her up at midnight.
Monica and I made another trip to visit Oma and Opa after supper. When we arrived, Oma was in a lot of discomfort. She seems to be having quite a few "panic" attacks and they seem to get worse when she is in bed and trying to sleep. I am beginning to think that it is a "physical" response to the trouble that she is having breathing.
Monica stayed with her mother and tried to help her sleep while I visited with Opa. The visit upset Monica and caused her to cry quite a bit. She didn't like to see her mother in this condition and she felt bad that her mother had to see her suffering the effects of her treatments etc.
My visit with Opa was quite good. I think he is settling in (although he seemed happy to have another visitor).
Marley returns from her visit to her boyfriend. Monica and I will be picking her up at midnight.
Tuesday, October 11, 2011
Tuesday, October 11,2011
(posted by Greg)
On Monday Daniel left for Boise. It was nice seeing him again so soon. Monica and I visited her parents again. We will have to work on the scheduling and timing for these visits as, including travel, even a brief visit takes 3 hours.
Monica and I felt sorry for both Oma and Opa. Opa had spent quite a bit of time alone in his room and Oma continues to be very weak and, while resigned to her lot, not happy with it. Monica and I took Oma to Opa's building while he ate dinner. He seemed to enjoy the dinner and the conversation with his tablemates. After dinner we took them both to Opa's room for a visit. I had the distinct impression that, in some way, Oma enjoyed being with Opa, in part, because she still plays a lead role in the relationship.
On Tuesday, I worked late but Moncia and I still made a quick (3 hour) visit to Langley. Opa seemed glad to see us but was in a pretty good mood. He had spent most of the day with Ingo doing chores and making some medical appointments. Oma was in her bed already but we had pretty good visit with her.
The Cancer Agency called today and confirmed Moncia's MRI appointment for October 21st . We should get some feedback on the effectiveness of Monica's treatment at the follow-up appointment with the oncologist on October 25th
On Monday Daniel left for Boise. It was nice seeing him again so soon. Monica and I visited her parents again. We will have to work on the scheduling and timing for these visits as, including travel, even a brief visit takes 3 hours.
Monica and I felt sorry for both Oma and Opa. Opa had spent quite a bit of time alone in his room and Oma continues to be very weak and, while resigned to her lot, not happy with it. Monica and I took Oma to Opa's building while he ate dinner. He seemed to enjoy the dinner and the conversation with his tablemates. After dinner we took them both to Opa's room for a visit. I had the distinct impression that, in some way, Oma enjoyed being with Opa, in part, because she still plays a lead role in the relationship.
On Tuesday, I worked late but Moncia and I still made a quick (3 hour) visit to Langley. Opa seemed glad to see us but was in a pretty good mood. He had spent most of the day with Ingo doing chores and making some medical appointments. Oma was in her bed already but we had pretty good visit with her.
The Cancer Agency called today and confirmed Moncia's MRI appointment for October 21st . We should get some feedback on the effectiveness of Monica's treatment at the follow-up appointment with the oncologist on October 25th
Sunday, October 9, 2011
Sunday, October 9, 2011
We moved Opa and his belongings to the care home today. It was an emotional experience for him but, while it showed occasionally, he put on a pretty brave face and handled it quite well. I quite liked his suite and was generally impressed with his part of the care home. Once we got him settled in, we brought Oma to his Opa's suite and had some good family time. Ingo is going back to have supper with Opa tonight.
Oma is trying her best to settle in but is still feeling "panicky" and is not really happy with her situation. Hopefully, time will take care of some of this because she really does need the kind of care that they can provide.
The move went quite well. My brother Pat came with his big truck and his brother-in-law, Ken, so with Daniel, Jesse, Monica, Ingo and myself we had enough room in the vehicles and lots of help.
Oma is trying her best to settle in but is still feeling "panicky" and is not really happy with her situation. Hopefully, time will take care of some of this because she really does need the kind of care that they can provide.
The move went quite well. My brother Pat came with his big truck and his brother-in-law, Ken, so with Daniel, Jesse, Monica, Ingo and myself we had enough room in the vehicles and lots of help.
Saturday, October 8, 2011
Saturday, October 8, 2011
(posted by Greg)
Monica, Daniel and I went to visit Oma at her new care home in Langley. The home (and her room) is very nice and the staff seem to be be nice as well. Unfortunately, for some reason Oma is not reacting well to the change. She has been experiencing panic attacks and is already trying to figure out how she can go back to her own home (which is not really an option any more). Tomorrow we are moving some of her furniture to make her room more comfortable and will likely move Opa (or at least his things) as well. Oma realizes that she needs the care which this care facility provides and hopefully she will settle in as time passes.
I think Monica finds all of this hard to take.I have no doubt that she feels bad for her mom and dad and that she feels guilty for not being able to help more.
Monica, Daniel and I went to visit Oma at her new care home in Langley. The home (and her room) is very nice and the staff seem to be be nice as well. Unfortunately, for some reason Oma is not reacting well to the change. She has been experiencing panic attacks and is already trying to figure out how she can go back to her own home (which is not really an option any more). Tomorrow we are moving some of her furniture to make her room more comfortable and will likely move Opa (or at least his things) as well. Oma realizes that she needs the care which this care facility provides and hopefully she will settle in as time passes.
I think Monica finds all of this hard to take.I have no doubt that she feels bad for her mom and dad and that she feels guilty for not being able to help more.
Friday, October 7, 2011
(posted by Greg)
Not much to blog about today. Daniel and I were busy at a conference so Monica was home alone for most of the day. The 3 of us had a nice dinner. I think Monica enjoys having Daniel around (particularly with the house so quiet with Marley away).
Oma was moved (we understand successfully) today from Richmond Hospital to the care home. She was able to phone Monica from there.
Not much to blog about today. Daniel and I were busy at a conference so Monica was home alone for most of the day. The 3 of us had a nice dinner. I think Monica enjoys having Daniel around (particularly with the house so quiet with Marley away).
Oma was moved (we understand successfully) today from Richmond Hospital to the care home. She was able to phone Monica from there.
Thursday, October 6, 2011
Thursday, October 6, 2011
(posted by Greg)
Monica and I went to the airport this afternoon to pick up Daniel who is visiting for the weekend from Boise. After picking him up, we all went to the hospital to visit Oma. I returned to work for a while while Daniel and Monica did some banking and chores. Jesse joined us for a dinner and we had a nice evening.
It was confirmed that Monica's mother will be moved from the hospital to the care home tomorrow. I can't help but admire how she has thought things through and seems to be at peace with how things are playing out.
Tomorrow Daniel and I are off to a legal technology conference together.
Monica and I went to the airport this afternoon to pick up Daniel who is visiting for the weekend from Boise. After picking him up, we all went to the hospital to visit Oma. I returned to work for a while while Daniel and Monica did some banking and chores. Jesse joined us for a dinner and we had a nice evening.
It was confirmed that Monica's mother will be moved from the hospital to the care home tomorrow. I can't help but admire how she has thought things through and seems to be at peace with how things are playing out.
Tomorrow Daniel and I are off to a legal technology conference together.
Wednesday, October 5, 2011
(posted by Greg)
Monica and I again attended the Brain Tumour Support Group today. Although each session follows a set format, no one session is the same as the participants change from month to month and the discussions have a life of their own. This session was a very emotional one. Today there were more participants who have young children and one of them was only just diagnosed with a tumour which would normally result in a short life expectancy. The very emotional discussions again really underlined a couple of key points: the importance of appreciating each moment, the value of everyday things which we take for granted when we are healthy and the importance and value of relationships with family and friends. Some of the participants are long-time survivors who continue to attend the sessions to help others by passing along their experiences (and by being living examples that the statistical prognoses are not always accurate).
Monica and I then had a chance to connect with our friends, Tony and Liz, for nice lunch/visit.
In the evening we again visited Oma. Apparently, the Drs have indicated that there is a good chance that she will be transferred to the care home which has been arranged this week. I really admire her attitude but I can't help but worry about how she will be able to continue to cope with her problems and what quality of life that she will have.
Daniel is flying home tomorrow for some business and a weekend visit . We are looking forward to seeing him again so soon.
Monica and I again attended the Brain Tumour Support Group today. Although each session follows a set format, no one session is the same as the participants change from month to month and the discussions have a life of their own. This session was a very emotional one. Today there were more participants who have young children and one of them was only just diagnosed with a tumour which would normally result in a short life expectancy. The very emotional discussions again really underlined a couple of key points: the importance of appreciating each moment, the value of everyday things which we take for granted when we are healthy and the importance and value of relationships with family and friends. Some of the participants are long-time survivors who continue to attend the sessions to help others by passing along their experiences (and by being living examples that the statistical prognoses are not always accurate).
Monica and I then had a chance to connect with our friends, Tony and Liz, for nice lunch/visit.
In the evening we again visited Oma. Apparently, the Drs have indicated that there is a good chance that she will be transferred to the care home which has been arranged this week. I really admire her attitude but I can't help but worry about how she will be able to continue to cope with her problems and what quality of life that she will have.
Daniel is flying home tomorrow for some business and a weekend visit . We are looking forward to seeing him again so soon.
Tuesday, October 4, 2011
Tuesday, October 4, 2011
(posted by Greg)
Monica has been home alone yesterday and today. She has been alternating resting quite a bit and tackling miscellaneous jobs around the house. I think that, on one level at least, she is enjoying the quiet time but she does seem happy to see me (strange as that may seem) when I get home.
We have gone to visit Oma at the hospital each of the last couple of evenings. The visits have been good and Oma seems to be stable (maybe even a bit better). Ingo took his father to the care home which they are looking at and, by all accounts, that went well. So, we seem to be progressing to a situation where they will both be in a the same care home (but with separate rooms and different levels of care).
We are still waiting for the results of Monica's last blood test.Tomorrow Monica and I go to the Brain Tumour Support Group meeting so perhaps we will get the results then. We are also going to meet our friends, Tony and Liz, who are visiting from Saltspring Island for lunch tomorrow.
Monica has been home alone yesterday and today. She has been alternating resting quite a bit and tackling miscellaneous jobs around the house. I think that, on one level at least, she is enjoying the quiet time but she does seem happy to see me (strange as that may seem) when I get home.
We have gone to visit Oma at the hospital each of the last couple of evenings. The visits have been good and Oma seems to be stable (maybe even a bit better). Ingo took his father to the care home which they are looking at and, by all accounts, that went well. So, we seem to be progressing to a situation where they will both be in a the same care home (but with separate rooms and different levels of care).
We are still waiting for the results of Monica's last blood test.Tomorrow Monica and I go to the Brain Tumour Support Group meeting so perhaps we will get the results then. We are also going to meet our friends, Tony and Liz, who are visiting from Saltspring Island for lunch tomorrow.
Sunday, October 2, 2011
Saturday, October 1, 2011
(posted by Greg)
First some random thoughts:
- Are we going to the lab too much if the nurse at station 4 says "Good morning Mr. Greiner take your usual seat:?
- Is there a lab or hospital with a loyalty program for airmiles?
-I wonder if Joe Bfstplk * belonged to a support group?
(*Al Capp reference for appropriate generations)
Monica and I have been busy making trips back and forth to Richmond to visit Opa in Steveston and Oma at the hospital. To my non-medical eyes Oma's condition remains more or less the same. We had a chance to watch her try and walk with the hospital staff today. You could see the determination in her face but she could only take about ten steps before she had to stop to rest and catch her breath. It is hard for her to talk too long for the same reason.
Opa seemed not too bad today. Ingo had been with him in the morning. Monica and I took him to the hospital to visit Oma and then had a Greek Salad that I had made for supper.
Monica has been taking naps but otherwise is holding up pretty well. She had a blood test late on Friday but we haven't got the results yet. We have another support group meeting this coming week
The Cancer Agency is running a research project on patients and caregivers who have finished their active treatments. We have been invited (and agreed to) to participate. In addition to being interviewed, we will be participating in a one-day seminar designed to help patients and caregivers through this phase. I think it will be similar to InspireHealth (talks on maintaining caregiver health, goal-setting etc) but I expect it to be a useful reinforcement.
First some random thoughts:
- Are we going to the lab too much if the nurse at station 4 says "Good morning Mr. Greiner take your usual seat:?
- Is there a lab or hospital with a loyalty program for airmiles?
-I wonder if Joe Bfstplk * belonged to a support group?
(*Al Capp reference for appropriate generations)
Monica and I have been busy making trips back and forth to Richmond to visit Opa in Steveston and Oma at the hospital. To my non-medical eyes Oma's condition remains more or less the same. We had a chance to watch her try and walk with the hospital staff today. You could see the determination in her face but she could only take about ten steps before she had to stop to rest and catch her breath. It is hard for her to talk too long for the same reason.
Opa seemed not too bad today. Ingo had been with him in the morning. Monica and I took him to the hospital to visit Oma and then had a Greek Salad that I had made for supper.
Monica has been taking naps but otherwise is holding up pretty well. She had a blood test late on Friday but we haven't got the results yet. We have another support group meeting this coming week
The Cancer Agency is running a research project on patients and caregivers who have finished their active treatments. We have been invited (and agreed to) to participate. In addition to being interviewed, we will be participating in a one-day seminar designed to help patients and caregivers through this phase. I think it will be similar to InspireHealth (talks on maintaining caregiver health, goal-setting etc) but I expect it to be a useful reinforcement.
Thursday, September 29, 2011
Wednesday, September 28, 2011
(posted by Greg)
Monica spent a quiet day at home today alone. I worked most of the day but came home early so that we could visit both Opa and Oma. We visited Opa first ( it seems strange for him to be in the house alone without Oma) and then went to the hospital to visit Oma. Her condition seems about the same. Monica and I got home late, had a quiet dinner and went to bed early.
The family (with the timely and welcome help of Monica's Aunt and cousin) was able to locate a nice nursing home in Langley which will be able to accomodate both Oma (who will need quite a high level of care) and Opa. It will be good that they can both be in the same home. Opa seems to be ok with this arrangement and Oma is definitely for it.
Monica spent a quiet day at home today alone. I worked most of the day but came home early so that we could visit both Opa and Oma. We visited Opa first ( it seems strange for him to be in the house alone without Oma) and then went to the hospital to visit Oma. Her condition seems about the same. Monica and I got home late, had a quiet dinner and went to bed early.
The family (with the timely and welcome help of Monica's Aunt and cousin) was able to locate a nice nursing home in Langley which will be able to accomodate both Oma (who will need quite a high level of care) and Opa. It will be good that they can both be in the same home. Opa seems to be ok with this arrangement and Oma is definitely for it.
Tuesday, September 27, 2011
Tuesday, September 27, 2011
(posted by Greg)
Oma's condition is about the same. We expect that, as her condition stabiizes, she will likely be transferred from the hospital to a care home that can provide the appropriate level of care. The family is starting to look around for a good situation (good care, nice facilities and access for visits from every one).
Monica visited her mother with Daniel and Mollie and spent most of the day with them. They will leave for Boise in the early hours of the morning. Marley is keeping them company to Boise and flying from there for a planned visit to her boyfriend at Purdue. Fortunately, Marley purchased travel insurance so that she can fly home quickly should it be necessary. Our house will be pretty quiet tomorrow.
Oma's condition is about the same. We expect that, as her condition stabiizes, she will likely be transferred from the hospital to a care home that can provide the appropriate level of care. The family is starting to look around for a good situation (good care, nice facilities and access for visits from every one).
Monica visited her mother with Daniel and Mollie and spent most of the day with them. They will leave for Boise in the early hours of the morning. Marley is keeping them company to Boise and flying from there for a planned visit to her boyfriend at Purdue. Fortunately, Marley purchased travel insurance so that she can fly home quickly should it be necessary. Our house will be pretty quiet tomorrow.
Monday, September 26, 2011
(posted by Greg)
Not a lot new to blog about today. We are spending a lot of time and energy focused on Oma (whose condition has not improved much and who remains in the hospital) and Opa. Otherwise our home is busy (happily) with Daniel and Mollie who will be heading back to Boise soon (likely Wednesday).
Monica is focused as well on her mom and dad. But I am really not sure how this is affecting her. I know it bothers her to see her Mom and Dad failing and, while it gives her something other than herself to think about, I worry that the stress and emotional upset is not good for her. I think that we will have to be mindful of this and look for opportunities to get her focused in a positive way on her health.
Not a lot new to blog about today. We are spending a lot of time and energy focused on Oma (whose condition has not improved much and who remains in the hospital) and Opa. Otherwise our home is busy (happily) with Daniel and Mollie who will be heading back to Boise soon (likely Wednesday).
Monica is focused as well on her mom and dad. But I am really not sure how this is affecting her. I know it bothers her to see her Mom and Dad failing and, while it gives her something other than herself to think about, I worry that the stress and emotional upset is not good for her. I think that we will have to be mindful of this and look for opportunities to get her focused in a positive way on her health.
Sunday, September 25, 2011
Saturday, September 24, 2011
(posted by Greg)
The last two days have been quite hectic with a lot of time being spent at Richmond Hospital. As I mentioned in my last blog, Monica's mother (who has serious heart problems) had been admitted to the hospital on Thursday with kidney failure. In simple terms, it will be difficult to treat both conditions. Her body needs more fluids to help her kidneys operate but the more fluids that are in her system make it harder for her heart to function. Even before this last problem, she has been very weak and had problems maintaining her breath when talking.
On Thursday, Oma (who remains mentally sharp) after considering the poor treatment options and the quality of her life decided not to have the physicians actively treat her further. After spending 24 hours in the hospital however and "perking up" a bit, she has re-visited that decision. Oma and most of the family met with the Doctor today to again review her situation. For now, she has decided to resume her heart medications and to have the physician do what he can to treat the kidney problem ( i.e. he will give her a limited amount of fluids intravenously). It is very clear however that she will not be able to return home and, as part of her decision, she will now be going into a nursing home when she is released from the hospital.
As you can imagine it has been an emotional couple of days for Monica and all of us. However, at least the need to make a decision about her living arrangements has now been resolved.
As it happens, on Friday evening Opa was also admitted to the hospital. While everyone else was at the hospital, he got in a predicament at home where he was picking some tomatoes, wound up on the ground and could not get up. A neighbour called the ambulance and he wound up in the emergency ward. The family had spent a frantic couple of hours trying to locate him before learning he was two floors below Oma.
Opa was released from the hospital Friday night but it seems pretty clear to all concerned (including Opa - we think) that he will not be able to be alone in their home and that he will need to go into a home as well. So, we will have lots of decisions in the next week or so. Fortunately, Ingo is taking the lead (with quite a bit of help from Marley and Jesse) on these issues so that Monica can, to the extent possible, focus on her own health and continue to get more rest.
Monica's neutrophils were low again in the last blood test. So, she is again susceptible to infections and we are having to be careful with all of the hospital visits.
The last two days have been quite hectic with a lot of time being spent at Richmond Hospital. As I mentioned in my last blog, Monica's mother (who has serious heart problems) had been admitted to the hospital on Thursday with kidney failure. In simple terms, it will be difficult to treat both conditions. Her body needs more fluids to help her kidneys operate but the more fluids that are in her system make it harder for her heart to function. Even before this last problem, she has been very weak and had problems maintaining her breath when talking.
On Thursday, Oma (who remains mentally sharp) after considering the poor treatment options and the quality of her life decided not to have the physicians actively treat her further. After spending 24 hours in the hospital however and "perking up" a bit, she has re-visited that decision. Oma and most of the family met with the Doctor today to again review her situation. For now, she has decided to resume her heart medications and to have the physician do what he can to treat the kidney problem ( i.e. he will give her a limited amount of fluids intravenously). It is very clear however that she will not be able to return home and, as part of her decision, she will now be going into a nursing home when she is released from the hospital.
As you can imagine it has been an emotional couple of days for Monica and all of us. However, at least the need to make a decision about her living arrangements has now been resolved.
As it happens, on Friday evening Opa was also admitted to the hospital. While everyone else was at the hospital, he got in a predicament at home where he was picking some tomatoes, wound up on the ground and could not get up. A neighbour called the ambulance and he wound up in the emergency ward. The family had spent a frantic couple of hours trying to locate him before learning he was two floors below Oma.
Opa was released from the hospital Friday night but it seems pretty clear to all concerned (including Opa - we think) that he will not be able to be alone in their home and that he will need to go into a home as well. So, we will have lots of decisions in the next week or so. Fortunately, Ingo is taking the lead (with quite a bit of help from Marley and Jesse) on these issues so that Monica can, to the extent possible, focus on her own health and continue to get more rest.
Monica's neutrophils were low again in the last blood test. So, she is again susceptible to infections and we are having to be careful with all of the hospital visits.
Friday, September 23, 2011
Thursday, September 22, 2011
(posted by Greg)
This day started with one of those "bad " phone calls that we have been dreading. Opa called early to let us know that Oma had been taken to the emergency department at 6:00 a.m. In shifts, the family spent most of the day at the hospital. Apparently, Oma's kidney's aren't working and her ongoing treatment has become problematic. I will write more about this at another time but, essentially, Oma (who is mentally still exceptionally bright) has opted not to have the risky type of treatment which would be needed but which would not (given her condition- in particular the condition of her heart) likely have much success and likely only prolong the inevitable. She has opted for a more comforting type of treatment which will essentially mean that she is receiving palliative care.
I will blog more about this care and about Oma when I have an opportunity.
This day started with one of those "bad " phone calls that we have been dreading. Opa called early to let us know that Oma had been taken to the emergency department at 6:00 a.m. In shifts, the family spent most of the day at the hospital. Apparently, Oma's kidney's aren't working and her ongoing treatment has become problematic. I will write more about this at another time but, essentially, Oma (who is mentally still exceptionally bright) has opted not to have the risky type of treatment which would be needed but which would not (given her condition- in particular the condition of her heart) likely have much success and likely only prolong the inevitable. She has opted for a more comforting type of treatment which will essentially mean that she is receiving palliative care.
I will blog more about this care and about Oma when I have an opportunity.
Wednesday, September 21, 2011
(posted by Greg)
Fortunately, I checked the calendar and realized that Monica's follow-up with the radiation oncologist was today and not Thursday as I first thought. I took Monica to the Cancer Agency for our late afternoon appointment. While we were waiting our nurse practitioner noticed us and arranged for Monica' blood test to be taken while we were waiting rather than on Friday. We also had a brief chance to speak with the chemo oncologist. In response to a question from me, he said that they are not planning to resume the chemo on a monthly basis for 6 months (as originally planned) because Monica's bone marrow (for genetic reasons) really doesn't like the chemo. He did say in passing that, in some cases, it means that the chemo works well against the tumour as well. (fingers-crossed!).
The follow-up with the radiation oncologist was fairly routine. He was however able to confirm that Monica's MRI is scheduled for October 21st . He explained that they like to wait a couple of months following the last radiation to help ensure that the readings are more accurate (because they are not picking up swelling from the radiation.
Fortunately, I checked the calendar and realized that Monica's follow-up with the radiation oncologist was today and not Thursday as I first thought. I took Monica to the Cancer Agency for our late afternoon appointment. While we were waiting our nurse practitioner noticed us and arranged for Monica' blood test to be taken while we were waiting rather than on Friday. We also had a brief chance to speak with the chemo oncologist. In response to a question from me, he said that they are not planning to resume the chemo on a monthly basis for 6 months (as originally planned) because Monica's bone marrow (for genetic reasons) really doesn't like the chemo. He did say in passing that, in some cases, it means that the chemo works well against the tumour as well. (fingers-crossed!).
The follow-up with the radiation oncologist was fairly routine. He was however able to confirm that Monica's MRI is scheduled for October 21st . He explained that they like to wait a couple of months following the last radiation to help ensure that the readings are more accurate (because they are not picking up swelling from the radiation.
Tuesday, September 20, 2011
Monday, September 19, 2011
(posted by Greg)
Daniel, Mollie and Monica were alone most of the day ( I worked and Marley was working for GBC Law giving out cupcakes at a hole sponsored by GBC Law in a local golf tournament). I am happy that Daniel is getting to spend some good time with Monica.
Later this week (Thursday) Monica has a follow-up visit with the radiation oncologist and she will be having her blood work done again on Friday. We are in a bit of a holding pattern with Monica right now- waiting for her to feel strong enough to travel a bit and waiting to see how effective the treatments have been. The day-to-day routine around home is nice and we are having some good time together as a family but the uncertainty is hard to deal with sometimes.
Daniel, Mollie and Monica were alone most of the day ( I worked and Marley was working for GBC Law giving out cupcakes at a hole sponsored by GBC Law in a local golf tournament). I am happy that Daniel is getting to spend some good time with Monica.
Later this week (Thursday) Monica has a follow-up visit with the radiation oncologist and she will be having her blood work done again on Friday. We are in a bit of a holding pattern with Monica right now- waiting for her to feel strong enough to travel a bit and waiting to see how effective the treatments have been. The day-to-day routine around home is nice and we are having some good time together as a family but the uncertainty is hard to deal with sometimes.
Sunday, September 18, 2011
(posted by Greg)
Not much to blog about today.I had to work a bit and Marley had to coach soccer. Daniel, Mollie and Monica had a quiet day at home together and made a trip to the Mall together and we had a nice family supper. Jesse was away this weekend at Glacier school so he was m.i.a.
It is hard to tell if Monica's energy levels are improving or not. Sometimes I think so and at other times I think it is my imagination. I will be interested in seeing the blood test results next week.
Not much to blog about today.I had to work a bit and Marley had to coach soccer. Daniel, Mollie and Monica had a quiet day at home together and made a trip to the Mall together and we had a nice family supper. Jesse was away this weekend at Glacier school so he was m.i.a.
It is hard to tell if Monica's energy levels are improving or not. Sometimes I think so and at other times I think it is my imagination. I will be interested in seeing the blood test results next week.
Saturday, September 17, 2011
(posted by Greg)
The weather wasn't too good today but during a break managed to all (Daniel, Mollie, Marley and Monica) go to the Farmer's Market at Burnaby Village where we were able to buy some fresh organic produce. The highlight for us all was the restored Carousel. It was open and Mollie was able to have a couple of rides. She had the biggest smiles and would wave at us each time her horse came around. Her disposition and unreserved childlike responses are good medicine for us all (particularly Monica of course).Mollie talks to Monica and interacts with her in a completely natural way and without any regard for Monica's health issues. I think that Monica actually likes this and it is good for her.
The weather wasn't too good today but during a break managed to all (Daniel, Mollie, Marley and Monica) go to the Farmer's Market at Burnaby Village where we were able to buy some fresh organic produce. The highlight for us all was the restored Carousel. It was open and Mollie was able to have a couple of rides. She had the biggest smiles and would wave at us each time her horse came around. Her disposition and unreserved childlike responses are good medicine for us all (particularly Monica of course).Mollie talks to Monica and interacts with her in a completely natural way and without any regard for Monica's health issues. I think that Monica actually likes this and it is good for her.
Saturday, September 17, 2011
Friday, September 16, 2011
(posted by Greg)
It is amazing how quickly a 3 and 1/2 yr old can change the sounds and feelings around a house. Daniel and Mollie arrived around supper time. We were real happy to see them both and especially enjoyed Mollie's hugs and kisses. It took Mollie about 5 minutes to remember where everything was, play (word used loosely) the piano, expropriate the quilt Cathy had made for Monica and generally take over. It was great and especially nice to see Monica's reaction to having Mollie around. She was obviously happy and had obviously had all of her maternal instincts quickly re-kindled. I enjoyed it too ( not sure when I last said "Coming ready or not!" and pretended not to see the little girl saying "Grandpa, I am over here!")
We should be in for some fun for the next week or so. We are looking forward to the visit.
It is amazing how quickly a 3 and 1/2 yr old can change the sounds and feelings around a house. Daniel and Mollie arrived around supper time. We were real happy to see them both and especially enjoyed Mollie's hugs and kisses. It took Mollie about 5 minutes to remember where everything was, play (word used loosely) the piano, expropriate the quilt Cathy had made for Monica and generally take over. It was great and especially nice to see Monica's reaction to having Mollie around. She was obviously happy and had obviously had all of her maternal instincts quickly re-kindled. I enjoyed it too ( not sure when I last said "Coming ready or not!" and pretended not to see the little girl saying "Grandpa, I am over here!")
We should be in for some fun for the next week or so. We are looking forward to the visit.
Thursday, September 15, 2011
(posted by "Curly")
When Monica had her surgery, we joked with her and the surgeon by asking if we could put in a request for any "super powers". Since her surgery, we have joked that Monica has been given "super hearing" because she seems to be able to hear every little thing we say (especially if we are talking about her or her tumour). Last night it became apparent that the surgeon may have tinkered with her sense of humour.
Monica had been cleaning out Jesse's old room so that Mollie could use it when she arrives. Near the stairs on our main living level, Monica had piled several things which she wanted me to put in the garage for storage. As we went to bed, she asked me to put them away right then as she was afraid that I would trip on them if I came down the stairs during the night. I was feeling particularly tired and a bit lazy so I told her "they are all right there I won't trip on them. I will move them in the morning". I went upstairs to go to bed.
When I got upstairs, I realized that something was open in the basement and I had to go back down two flights of stairs to close it so that I could "arm" the burglar alarm". Being tired, I wasn't happy about having to go back down, and momentarily blew my stack when I (you guessed it!) stubbed my toe and tripped on the items Monica had wanted me to put away. Knowing that it always helps to do this, I lost my temper and bellowed out a few choice expletives that I learned when I worked up North ( such as "Oh my gosh!).
The last thing I wanted to hear (especially while my toe was still hurting) were any comments on what had just happened or any reminders on how I had been forewarned. You can no doubt imagine how I was feeling when I went back upstairs where it was eerily quiet. ( I learned later that Marley practically had to gag Monica to stop her from saying anything). All remained very quiet until after Monica and I had been in bed for about 5 minutes. Then, Monica couldn't contain herself any more and broke out into the deepest and longest belly laugh that I have ever heard from her. The laugh was great (almost worth the stubbed toe) and infectious so that before long the 3 of us had a good family laugh and I had a good laugh when Marley told me how hard she had to work to stop Monica from saying anything in those first few minutes after I tripped.
I think I will see if Larry and Moe can look after the entertainment tonight.
When Monica had her surgery, we joked with her and the surgeon by asking if we could put in a request for any "super powers". Since her surgery, we have joked that Monica has been given "super hearing" because she seems to be able to hear every little thing we say (especially if we are talking about her or her tumour). Last night it became apparent that the surgeon may have tinkered with her sense of humour.
Monica had been cleaning out Jesse's old room so that Mollie could use it when she arrives. Near the stairs on our main living level, Monica had piled several things which she wanted me to put in the garage for storage. As we went to bed, she asked me to put them away right then as she was afraid that I would trip on them if I came down the stairs during the night. I was feeling particularly tired and a bit lazy so I told her "they are all right there I won't trip on them. I will move them in the morning". I went upstairs to go to bed.
When I got upstairs, I realized that something was open in the basement and I had to go back down two flights of stairs to close it so that I could "arm" the burglar alarm". Being tired, I wasn't happy about having to go back down, and momentarily blew my stack when I (you guessed it!) stubbed my toe and tripped on the items Monica had wanted me to put away. Knowing that it always helps to do this, I lost my temper and bellowed out a few choice expletives that I learned when I worked up North ( such as "Oh my gosh!).
The last thing I wanted to hear (especially while my toe was still hurting) were any comments on what had just happened or any reminders on how I had been forewarned. You can no doubt imagine how I was feeling when I went back upstairs where it was eerily quiet. ( I learned later that Marley practically had to gag Monica to stop her from saying anything). All remained very quiet until after Monica and I had been in bed for about 5 minutes. Then, Monica couldn't contain herself any more and broke out into the deepest and longest belly laugh that I have ever heard from her. The laugh was great (almost worth the stubbed toe) and infectious so that before long the 3 of us had a good family laugh and I had a good laugh when Marley told me how hard she had to work to stop Monica from saying anything in those first few minutes after I tripped.
I think I will see if Larry and Moe can look after the entertainment tonight.
Wednesday, September 14, 2011
Wednesday, September 14, 2011
(posted by Greg)
We all got going early today. I had a busy day ahead of me at the office. Monica and Marley went to InspireHealth and participated in a 2 hour course on the Mind-Body Connection. I understand that there was a lot of discussion about the effects of stress etc. The clear message (supported by scientific data) was how "the state of our minds, our stress levels, our moods, thoughts, attitudes and beliefs" can affect how our body, and in particular our immune system works. One quote from the handout by Dr. Teresa Clarke summarizes the course - "Learning how to relax, how to balance our lives, how to enjoy loving relationships and how to cultivate a healthy state of mind will help us move along toward better health and vitality and improve our chances of recovery from illness."
Monica and Marley enjoyed the course which was well-attended. They re-connected with a friend who has different type of cancer and who finished her radiation a couple of weeks prior to Monica. She has a blog as well which I found interesting to look at and compare with our blog. Her "style"is different but is quite effective as well.
We all got going early today. I had a busy day ahead of me at the office. Monica and Marley went to InspireHealth and participated in a 2 hour course on the Mind-Body Connection. I understand that there was a lot of discussion about the effects of stress etc. The clear message (supported by scientific data) was how "the state of our minds, our stress levels, our moods, thoughts, attitudes and beliefs" can affect how our body, and in particular our immune system works. One quote from the handout by Dr. Teresa Clarke summarizes the course - "Learning how to relax, how to balance our lives, how to enjoy loving relationships and how to cultivate a healthy state of mind will help us move along toward better health and vitality and improve our chances of recovery from illness."
Monica and Marley enjoyed the course which was well-attended. They re-connected with a friend who has different type of cancer and who finished her radiation a couple of weeks prior to Monica. She has a blog as well which I found interesting to look at and compare with our blog. Her "style"is different but is quite effective as well.
Tuesday, September 13, 2011
(posted by Greg)
Monica and Marley had a busy day. A morning visit to Oma and Opa where they did some chores for Oma. After that they did some chores around the house (as we tidy up in anticipation of the arrival of Daniel and Mollie). Marley reports that Monica was quite tired and fell to sleep while they took a break and watched T.V. in the afternoon
Monica and Marley had a busy day. A morning visit to Oma and Opa where they did some chores for Oma. After that they did some chores around the house (as we tidy up in anticipation of the arrival of Daniel and Mollie). Marley reports that Monica was quite tired and fell to sleep while they took a break and watched T.V. in the afternoon
Monday, September 12, 2011
Monday, September 12, 2011
(posted by Greg)
Monica's supplement supply was getting very low so she and Marley visited Finlandia Drugs.( This is a really well-stocked drug store with a lot of natural medicines and supplements on West Broadway), While in that neck of the woods, they dropped in on a beginner's yoga class at InspireHealth. They both seemed to like it and it was only near the end that Monica got tired.
At home today, Monica worked on getting one of the bedrooms ready for Daniel and Mollie. We are looking forward to their visit.
Monica's supplement supply was getting very low so she and Marley visited Finlandia Drugs.( This is a really well-stocked drug store with a lot of natural medicines and supplements on West Broadway), While in that neck of the woods, they dropped in on a beginner's yoga class at InspireHealth. They both seemed to like it and it was only near the end that Monica got tired.
At home today, Monica worked on getting one of the bedrooms ready for Daniel and Mollie. We are looking forward to their visit.
Sunday, September 11, 2011
Sunday, September 11, 2011
(posted by Greg)
We enjoyed the weather today and spent the better part of the day around home. Friends had given us some fresh fruit from Osoyoos and we really enjoyed it.
Monica, Marley and I went to visit Oma and Opa and then drove to White Rock. Ingo had made a fresh stew and we couldn't pass up on the invitation.
One of the noticeable effects of Monica's tumour was that she has not been as emotional as you might otherwise expect. She had an interesting reaction today to one of the 9/11 anniversary shows. It was a fairly upbeat show on how the people of Gander had reacted to the people forced to land there. For some reason (which I am not sure I understand), it made Monica cry quite a bit. Before long we were all intermittently crying and laughing!
We enjoyed the weather today and spent the better part of the day around home. Friends had given us some fresh fruit from Osoyoos and we really enjoyed it.
Monica, Marley and I went to visit Oma and Opa and then drove to White Rock. Ingo had made a fresh stew and we couldn't pass up on the invitation.
One of the noticeable effects of Monica's tumour was that she has not been as emotional as you might otherwise expect. She had an interesting reaction today to one of the 9/11 anniversary shows. It was a fairly upbeat show on how the people of Gander had reacted to the people forced to land there. For some reason (which I am not sure I understand), it made Monica cry quite a bit. Before long we were all intermittently crying and laughing!
Saturday, September 10, 2011
(posted by Greg)
After a nice breakfast today, we went and walked around the Farmer's Market at Trout Lake Part. It is obvious from the array of fresh fruit and vegetables that the harvest season is upon us. We stocked up on a few things (the organic red peppers were about 1/2 of what we have paid sometimes.) and enjoyed the poking around.
After a lunch ( with the fresh organic whole wheat bread), we drove to Cloverdale and watched a dog show with Ingo (he has a German Shepherd puppy and it was a German Shepherd show. There were some beautiful dogs and it was quite interesting to watch. The owners and trainers take the show pretty seriously (and I thought soccer parents were competitive.). Not sure if I enjoyed the dog watching or the people watching more.
We took our organic peppers to Ingo's and had a great Greek salad and fresh Chilliwack corn for supper . we watched the first part of Harry Potter and the Deathly Hallows. Ingo needed to see it before he and Marley go to theatre to see the latest show.
After a nice breakfast today, we went and walked around the Farmer's Market at Trout Lake Part. It is obvious from the array of fresh fruit and vegetables that the harvest season is upon us. We stocked up on a few things (the organic red peppers were about 1/2 of what we have paid sometimes.) and enjoyed the poking around.
After a lunch ( with the fresh organic whole wheat bread), we drove to Cloverdale and watched a dog show with Ingo (he has a German Shepherd puppy and it was a German Shepherd show. There were some beautiful dogs and it was quite interesting to watch. The owners and trainers take the show pretty seriously (and I thought soccer parents were competitive.). Not sure if I enjoyed the dog watching or the people watching more.
We took our organic peppers to Ingo's and had a great Greek salad and fresh Chilliwack corn for supper . we watched the first part of Harry Potter and the Deathly Hallows. Ingo needed to see it before he and Marley go to theatre to see the latest show.
Friday, September 9, 2011
(posted by Greg)
Was there an old saying "The family that takes blood tests together stays....."
Marley, Monica and I all went together for blood tests. The ones for Marley and I were part of our regular check-ups. I managed to fast for the required 12 hours prior to the test. Monica was having her blood checked again for the Cancer Agency. Her platelets and neutrophils have continued to improve and her hemoglobin, while low, has levelled off at least. They are going to give her a week off so we don't have another blood test for two weeks.
Just in case we get too relaxed however they have scheduled a a follow-up visit with the fill-in radiation oncologist for Thursday.
Was there an old saying "The family that takes blood tests together stays....."
Marley, Monica and I all went together for blood tests. The ones for Marley and I were part of our regular check-ups. I managed to fast for the required 12 hours prior to the test. Monica was having her blood checked again for the Cancer Agency. Her platelets and neutrophils have continued to improve and her hemoglobin, while low, has levelled off at least. They are going to give her a week off so we don't have another blood test for two weeks.
Just in case we get too relaxed however they have scheduled a a follow-up visit with the fill-in radiation oncologist for Thursday.
Thursday, September 8, 2011
Thursday, September 8, 2011
(posted by Greg)
Monica and Marley went this morning to visit Oma and Opa . I understand that it was a good visit. After lunch they did some chores (returning a set of sheets, trip to the bottle depot and then went shopping. It was a pleasant surprise for me (especially as I was having a busy day at work and had nothing planned for dinner) to come home and find that they had prepared dinner.
Tomorrow is another visit to the lab for a blood test for Monica. I am fasting tonight so that I can have my blood work done at the same time for my doctor.
Monica and Marley went this morning to visit Oma and Opa . I understand that it was a good visit. After lunch they did some chores (returning a set of sheets, trip to the bottle depot and then went shopping. It was a pleasant surprise for me (especially as I was having a busy day at work and had nothing planned for dinner) to come home and find that they had prepared dinner.
Tomorrow is another visit to the lab for a blood test for Monica. I am fasting tonight so that I can have my blood work done at the same time for my doctor.
Wednesday, September 7, 2011
(posted by Greg)
Monica and I attended the Brain Tumour Support Group today at the Cancer Agency. The group was well attended again. This is the 4th time we have participated so we are beginning to know many of the people. Unfortunately, each time there seems to be someone who has been new diagnosed.
Each session begins with one of the co-ordinators explaining the rules for the group (i.e. the need to keep the confidences of what people say and their obligation to do something if they felt someone was going to hurt themself or others ). Then each person identifies themselves to the group and tells the group whether he or she is the patient or a caregiver. Some people relay more of their history and the problems they are experiencing than others but there is no obligation to speak. Many of the stories are compelling and touching. The group meetings mean a lot to many of the participants.
Monica and I each get a lot from the support group as well. It is often informative and educational. This time the group split into two after the coffee break (de-caffinated green tea in my case). The patients stayed together as one group and the caregivers went to a separate room. Monica said that the patients' group talked quite a bit about seizures which is one of the common symptoms and side effects. I would like to have heard that discussion myself.
It was useful for me to listen to the other caregivers. Each caregiver's situation is different (I feel fortunate in many ways: ie. the flexibility that my job gives me, the love and support which we get from extended family and friends, the support that that my kids provide, the fact that Monica is doing as well as she is so far, our family's ability to provide what Monica needs). You quickly realize that some of the caregivers' loved ones are in worse situations and that some of them don't have the support that I enjoy. It was also useful to share some of the frustrations and worries that the caregivers have in common.
I went to work in the afternoon and Monica rested in the afternoon. She often feels cold but the weather was warm enough for her to enjoy the patio today where she was napping when I came home. Marley was out for the day (working for GBC Law who sponsored a hole at the Burnaby Board of Trade Golf tournament and coaching). Monica and I together prepared a big salad for supper and ate with Marley when she got home.
Monica and I attended the Brain Tumour Support Group today at the Cancer Agency. The group was well attended again. This is the 4th time we have participated so we are beginning to know many of the people. Unfortunately, each time there seems to be someone who has been new diagnosed.
Each session begins with one of the co-ordinators explaining the rules for the group (i.e. the need to keep the confidences of what people say and their obligation to do something if they felt someone was going to hurt themself or others ). Then each person identifies themselves to the group and tells the group whether he or she is the patient or a caregiver. Some people relay more of their history and the problems they are experiencing than others but there is no obligation to speak. Many of the stories are compelling and touching. The group meetings mean a lot to many of the participants.
Monica and I each get a lot from the support group as well. It is often informative and educational. This time the group split into two after the coffee break (de-caffinated green tea in my case). The patients stayed together as one group and the caregivers went to a separate room. Monica said that the patients' group talked quite a bit about seizures which is one of the common symptoms and side effects. I would like to have heard that discussion myself.
It was useful for me to listen to the other caregivers. Each caregiver's situation is different (I feel fortunate in many ways: ie. the flexibility that my job gives me, the love and support which we get from extended family and friends, the support that that my kids provide, the fact that Monica is doing as well as she is so far, our family's ability to provide what Monica needs). You quickly realize that some of the caregivers' loved ones are in worse situations and that some of them don't have the support that I enjoy. It was also useful to share some of the frustrations and worries that the caregivers have in common.
I went to work in the afternoon and Monica rested in the afternoon. She often feels cold but the weather was warm enough for her to enjoy the patio today where she was napping when I came home. Marley was out for the day (working for GBC Law who sponsored a hole at the Burnaby Board of Trade Golf tournament and coaching). Monica and I together prepared a big salad for supper and ate with Marley when she got home.
Wednesday, September 7, 2011
Tuesday, September 6, 2011
(posted by Greg)
I worked again today. Marley and Monica did quite a bit of running around (banking and some shopping). Monica wanted to give a gift to the radiation team at B.C. Cancer so they bought some nice jars/glasses to decorate and a bunch of jelly beans. We go tomorrow to the brain tumour support group at the B.C. Cancer Agency and will deliver the gifts then.
Monica and I had got her personal recipe book out on the weekend for a salad recipe that we like. Monica found another good salad recipe in it today and I was pleasantly surprised to have dinner ready when I got home.
Monica and I went out after dinner and to visit Choice's and Donald's to stock up our cupboard.
I worked again today. Marley and Monica did quite a bit of running around (banking and some shopping). Monica wanted to give a gift to the radiation team at B.C. Cancer so they bought some nice jars/glasses to decorate and a bunch of jelly beans. We go tomorrow to the brain tumour support group at the B.C. Cancer Agency and will deliver the gifts then.
Monica and I had got her personal recipe book out on the weekend for a salad recipe that we like. Monica found another good salad recipe in it today and I was pleasantly surprised to have dinner ready when I got home.
Monica and I went out after dinner and to visit Choice's and Donald's to stock up our cupboard.
Monday, September 5, 2011
(posted by Greg)
Monica and stayed home today. She had one part of the flower garden that she wanted to have cleaned up. So, we tackled it together. I did the heavier stuff. Monica did the lighter stuff and took on the responsibility for supervising the labourer. The weather was great, it was quite relaxing and we got a lot done.
When Monica is doing this type of work, I can see that she doesn't have the stamina or strength that she used to have.
I made homemade pizzas for supper and Monica washed and froze the blueberries which we got from Pat.
Monica and stayed home today. She had one part of the flower garden that she wanted to have cleaned up. So, we tackled it together. I did the heavier stuff. Monica did the lighter stuff and took on the responsibility for supervising the labourer. The weather was great, it was quite relaxing and we got a lot done.
When Monica is doing this type of work, I can see that she doesn't have the stamina or strength that she used to have.
I made homemade pizzas for supper and Monica washed and froze the blueberries which we got from Pat.
Sunday, September 4, 2011
(posted by Greg)
Last night's dessert turned out ok. The tapioca pearls were good but the fruit slushie was a bit runny. We tried it again today and everything turned out much better when we used frozen juice ice cubes and frozen fruit. We spiced up the pearls with some maple syrup too.
My brother Pat had picked up some organic blueberries for us in Abbotsford. So, Monica and I drove to Maple Ridge to pick up the blueberries and had a nice visit with Pat and Joyce. They also picked a nice bucket of fresh blackberries for us.
On the way home we stopped at another organic store in Coquitlam (Planet Organics) and bought the fixing for supper. Each of these stores carry different products and there is quite a range in the prices. We liked this store and plan on going back
Last night's dessert turned out ok. The tapioca pearls were good but the fruit slushie was a bit runny. We tried it again today and everything turned out much better when we used frozen juice ice cubes and frozen fruit. We spiced up the pearls with some maple syrup too.
My brother Pat had picked up some organic blueberries for us in Abbotsford. So, Monica and I drove to Maple Ridge to pick up the blueberries and had a nice visit with Pat and Joyce. They also picked a nice bucket of fresh blackberries for us.
On the way home we stopped at another organic store in Coquitlam (Planet Organics) and bought the fixing for supper. Each of these stores carry different products and there is quite a range in the prices. We liked this store and plan on going back
Saturday, September 3, 2011
Saturday, September 3, 2011
(posted by Greg)
Monica, Marley and I went to Steveston for a visit with Oma and Opa this morning. We picked up some groceries for them. Marley dropped Monica and I off in Steveston and we walked through the town and caught up with Marley at Oma's The visit was nice.
Monica took me shopping in the afternoon for some new jeans. We were out for a couple of hours by the time we bought groceries for ourselves. Monica was quite tired and had a good nap.
Tonight we are trying to make a special dessert. Marley is going to make a fruit smoothie from some fresh fruit we bought. Monica and I had bought some tapioca pearls at the T& T market and so we are trying our home-grown version of a bubble drink. ( I will keep you posted on how it turns out.)
Monica, Marley and I went to Steveston for a visit with Oma and Opa this morning. We picked up some groceries for them. Marley dropped Monica and I off in Steveston and we walked through the town and caught up with Marley at Oma's The visit was nice.
Monica took me shopping in the afternoon for some new jeans. We were out for a couple of hours by the time we bought groceries for ourselves. Monica was quite tired and had a good nap.
Tonight we are trying to make a special dessert. Marley is going to make a fruit smoothie from some fresh fruit we bought. Monica and I had bought some tapioca pearls at the T& T market and so we are trying our home-grown version of a bubble drink. ( I will keep you posted on how it turns out.)
Friday, September 2, 2011
(posted by Greg)
I took Monica for her blood test this morning. The lab was very busy (about 30 people ahead of Monica). I was going to have my blood tested today (my doctor had prescribed a 6 month test after my last physical). I couldn't do it however as I forgot that I was supposed to fast for 12 hours . For sake of maintaining symmetry in my life, I may have to "read up" on how to best do organic fasting
We got the results from the blood test in the late afternoon. Rosemary (the nurse-practitioner who we most often deal with) commented that they are getting better but slowly. Monica's platelets have improved (actually her numbers scared me a bit when I realized how low her platelets were at one point) and her white blood cells are a little better. Her hemoglobin did not drop but did not go up much . The nurse summarized it by saying that she is still anemic. So, another blood test is scheduled for next Friday ( I guess I am fasting on Thursday). If Monica feels good and if next week's numbers are steady, they may give her a week off from the blood tests.
I took Monica for her blood test this morning. The lab was very busy (about 30 people ahead of Monica). I was going to have my blood tested today (my doctor had prescribed a 6 month test after my last physical). I couldn't do it however as I forgot that I was supposed to fast for 12 hours . For sake of maintaining symmetry in my life, I may have to "read up" on how to best do organic fasting
We got the results from the blood test in the late afternoon. Rosemary (the nurse-practitioner who we most often deal with) commented that they are getting better but slowly. Monica's platelets have improved (actually her numbers scared me a bit when I realized how low her platelets were at one point) and her white blood cells are a little better. Her hemoglobin did not drop but did not go up much . The nurse summarized it by saying that she is still anemic. So, another blood test is scheduled for next Friday ( I guess I am fasting on Thursday). If Monica feels good and if next week's numbers are steady, they may give her a week off from the blood tests.
Thursday, September 1, 2011
(posted by Greg)
Monica and I were alone today. Ingo had taken Marley for a re-write of her MCAT in an effort to better her score. I came home from work a bit early and barbequed a small fillet of salmon. We had dinner early (for a change) and drove out to Steveston for a nice visit with Oma and Opa.
Monica and I had been getting used to being "empty-nesters" before she got sick. The house seemed pretty empty tonight with both Jesse and Marley gone.
Monica and I were alone today. Ingo had taken Marley for a re-write of her MCAT in an effort to better her score. I came home from work a bit early and barbequed a small fillet of salmon. We had dinner early (for a change) and drove out to Steveston for a nice visit with Oma and Opa.
Monica and I had been getting used to being "empty-nesters" before she got sick. The house seemed pretty empty tonight with both Jesse and Marley gone.
Thursday, September 1, 2011
Wednesday, August 31, 2011
Wednesday, August 31, 2011
(posted by Greg)
At InspireHealth they advise us not to beat ourselves up too much if we occasionally slip off our nutritional plan as long as you get back on it. I had to work a little later than I have been and didn't have time to plan or prepare dinner. So, we all slipped a bit and ordered Panago Pizza for the first time in many months. I think our taste buds are changing. While we enjoyed the pizza, it didn't taste as good as I had been imagining it.
As I think I mentioned in an earlier blog, Marley and I are part of a caregiver's study being carried out by UBC. I am in my second round with them. So, I had my blood pressure and interview on Tuesday. I am having to take saliva samples 6 times a day for the next 3 days (they measure stress somehow this way) and keep a sleep log.I also have to wear a special watch which they use to record some data about how I am sleeping.
(posted by Greg)
At InspireHealth they advise us not to beat ourselves up too much if we occasionally slip off our nutritional plan as long as you get back on it. I had to work a little later than I have been and didn't have time to plan or prepare dinner. So, we all slipped a bit and ordered Panago Pizza for the first time in many months. I think our taste buds are changing. While we enjoyed the pizza, it didn't taste as good as I had been imagining it.
As I think I mentioned in an earlier blog, Marley and I are part of a caregiver's study being carried out by UBC. I am in my second round with them. So, I had my blood pressure and interview on Tuesday. I am having to take saliva samples 6 times a day for the next 3 days (they measure stress somehow this way) and keep a sleep log.I also have to wear a special watch which they use to record some data about how I am sleeping.
Tuesday, August 30, 2011
(posted by Greg)
I realize that I keep saying that we have had another quiet day in Greinerville. But, we are in a time when there is not a lot of activity. Basically, Monica and I are waiting for her blood to get better and for her to get some more energy. Marley is studying, Jesse is back to his second year in medical school at UBC and moved into his own place again. And, I am trying to work more right now so that I will be more able to travel or spend time with Monica in the Fall As she feels now, Monica does not feel like undertaking any travel etc. so it will probably be October at least before we can plan anything. I have been encouraging Monica to think more about what she might like to do this Fall.
However, I don't want to give the wrong impression. Monica seems to be quite happy and is having some close times with the family.
Tonight my cousin Bob and his wife, Mary, dropped in for nice visit. They are on their way to Hawaii.
I realize that I keep saying that we have had another quiet day in Greinerville. But, we are in a time when there is not a lot of activity. Basically, Monica and I are waiting for her blood to get better and for her to get some more energy. Marley is studying, Jesse is back to his second year in medical school at UBC and moved into his own place again. And, I am trying to work more right now so that I will be more able to travel or spend time with Monica in the Fall As she feels now, Monica does not feel like undertaking any travel etc. so it will probably be October at least before we can plan anything. I have been encouraging Monica to think more about what she might like to do this Fall.
However, I don't want to give the wrong impression. Monica seems to be quite happy and is having some close times with the family.
Tonight my cousin Bob and his wife, Mary, dropped in for nice visit. They are on their way to Hawaii.
Monday, August 29, 2011
Monday, August 29, 2011
(posted by Greg)
We got the results on Monica's bloodwork. "Slow but Steady improvement" were the nurse's comments If her condition remains unchanged, Monica goes again for another blood test on Friday.
I think that Monica (and all of us for that matter) would like to hear that her blood was dramatically improving and she is a bit disappointed. She had a pretty good day however. I was at work and Marley was busy studying so it was quiet but she did some household chores.
We got the results on Monica's bloodwork. "Slow but Steady improvement" were the nurse's comments If her condition remains unchanged, Monica goes again for another blood test on Friday.
I think that Monica (and all of us for that matter) would like to hear that her blood was dramatically improving and she is a bit disappointed. She had a pretty good day however. I was at work and Marley was busy studying so it was quiet but she did some household chores.
Sunday, August 28, 2011
Sunday, August 28,2011
(posted by Greg)
Jesse and Sydney came by for breakfast (that was a fast return!). I prepared some whole wheat organic blueberry pancakes which we had with organic maple syrup. All the pancakes disappeared, so I think are getting used to this healthy cooking.
Ingo dropped by for a visit. Monica, Marley and I joined Ingo on a walk at the Kerr Road dog park. It was really quite nice and Ingo's 6-month old German Shepherd (Allie) was a lot of fun.
Monica then went with Jesse and Sydney so they could use her Costco card and stock up their new suite.
Monica had a good nap in the afternoon.
Monica has always been a fairly quiet person. However, it was her "indifference" and quietness which were the first symptoms of the tumour. She has been quiet the last couple of days and I find that I am quite sensitive too it. At this time I don' think that it is anything unusal. But I can see that we are going to have to live with being anxious (and worrying about the tumour) everytime Monica's behaviour changes in the slightest.
We expect to get the blood tests results tomorrow.
Jesse and Sydney came by for breakfast (that was a fast return!). I prepared some whole wheat organic blueberry pancakes which we had with organic maple syrup. All the pancakes disappeared, so I think are getting used to this healthy cooking.
Ingo dropped by for a visit. Monica, Marley and I joined Ingo on a walk at the Kerr Road dog park. It was really quite nice and Ingo's 6-month old German Shepherd (Allie) was a lot of fun.
Monica then went with Jesse and Sydney so they could use her Costco card and stock up their new suite.
Monica had a good nap in the afternoon.
Monica has always been a fairly quiet person. However, it was her "indifference" and quietness which were the first symptoms of the tumour. She has been quiet the last couple of days and I find that I am quite sensitive too it. At this time I don' think that it is anything unusal. But I can see that we are going to have to live with being anxious (and worrying about the tumour) everytime Monica's behaviour changes in the slightest.
We expect to get the blood tests results tomorrow.
August 27, 2011
(posted by Greg)
I slept in a bit today and so Monica and I both woke up about the same time. It was fairly early and so we drove to Foreshore Park and had a nice early morning walk. After our walk we drove to the new Donald's Market at New Westminster Quay. Donald's is not too large but has a pretty good selection of organic products and the prices seem a bit better. Monica was a bit tired by this time so we drove home and had breakfast.
I went to a Whitecaps game with my brother, Barry, this afternoon. Marley dropped us off so we didn't have to try and park with the P.N.E on . Barry and I enjoyed our selves and the Whitecaps managed to get a win for us. Monica came with Marley when she picked Barry and I up and so we all stopped for a visit at Barry's when we dropped him off. Monica had a chance to visit with Barry, Sharon and Dawn.
Jesse moved out today to his newly rented basement suite. So it was quieter at home without Jesse and Sydney.
I slept in a bit today and so Monica and I both woke up about the same time. It was fairly early and so we drove to Foreshore Park and had a nice early morning walk. After our walk we drove to the new Donald's Market at New Westminster Quay. Donald's is not too large but has a pretty good selection of organic products and the prices seem a bit better. Monica was a bit tired by this time so we drove home and had breakfast.
I went to a Whitecaps game with my brother, Barry, this afternoon. Marley dropped us off so we didn't have to try and park with the P.N.E on . Barry and I enjoyed our selves and the Whitecaps managed to get a win for us. Monica came with Marley when she picked Barry and I up and so we all stopped for a visit at Barry's when we dropped him off. Monica had a chance to visit with Barry, Sharon and Dawn.
Jesse moved out today to his newly rented basement suite. So it was quieter at home without Jesse and Sydney.
Friday, August 26, 2011
(posted by Greg)
Marley took Monica to the lab today for her blood tests. We have not got the results yet.
Otherwise it was a quiet day at the Greiner Home. Monica was home and did some chores and rested. Marley studied and I worked today.
Marley took Monica to the lab today for her blood tests. We have not got the results yet.
Otherwise it was a quiet day at the Greiner Home. Monica was home and did some chores and rested. Marley studied and I worked today.
Thursday, August 25, 2011
Thursday, August25, 2011
(posted by Greg)
Fortunately for the household ( and me in particular) Monica's low hemoglobin doesn't prevent her from doing the laundry. She has continued to do this chore throughout. Even when she was at her worst, I would find piles of clean laundry on the stairs ready to go up to our bedroom. She did quite a bit of laundry today and took a couple of naps.
Tomorrow is another blood test Hopefully, it will show some improvement
I was late home tonight and had to plan dinner on the fly. I was happy with the recipes that I tried but Monica still has no appreciation for most food.
Fortunately for the household ( and me in particular) Monica's low hemoglobin doesn't prevent her from doing the laundry. She has continued to do this chore throughout. Even when she was at her worst, I would find piles of clean laundry on the stairs ready to go up to our bedroom. She did quite a bit of laundry today and took a couple of naps.
Tomorrow is another blood test Hopefully, it will show some improvement
I was late home tonight and had to plan dinner on the fly. I was happy with the recipes that I tried but Monica still has no appreciation for most food.
Wednesday, August 24, 2011
Wednesday, August 24, 2010
(posted by Greg)
A quiet day at the Greiner household. Not much to blog about : I worked again, Jesse and Sidney were out for the day and Marley was studying up a storm. Monica was in good spirits today.
Marley is helping to coach a U-14 girls team in the new B.C. High Performance League. She went to a late practice tonight. I think she is enjoying be back with soccer.
A quiet day at the Greiner household. Not much to blog about : I worked again, Jesse and Sidney were out for the day and Marley was studying up a storm. Monica was in good spirits today.
Marley is helping to coach a U-14 girls team in the new B.C. High Performance League. She went to a late practice tonight. I think she is enjoying be back with soccer.
Tuesday, August 23, 2011
(posted by Greg)
I worked again today. I am trying to get as much work as I can done while Monica needs to stick close to home. Hopefully, we will be able to travel a bit in the fall.
Monica, Marley, Jesse and Sidney (Jesse's girlfriend) visited Oma this afternoon. It was her 80th birthday today. Marley said that Oma seemed to enjoy the visit.
Ingo came over for dinner tonight. I tried my Lentil Hotpot recipe but forgot to add one of the Indian spices which we like so it was a bit bland.
Monica seemed to be about the same today. Still napping quite a bit but she did tackle some more chores
I worked again today. I am trying to get as much work as I can done while Monica needs to stick close to home. Hopefully, we will be able to travel a bit in the fall.
Monica, Marley, Jesse and Sidney (Jesse's girlfriend) visited Oma this afternoon. It was her 80th birthday today. Marley said that Oma seemed to enjoy the visit.
Ingo came over for dinner tonight. I tried my Lentil Hotpot recipe but forgot to add one of the Indian spices which we like so it was a bit bland.
Monica seemed to be about the same today. Still napping quite a bit but she did tackle some more chores
Monday, August 22, 2011
Monday, August 22, 2011
(posted by Greg)
First, I apologize for the gap in the updates. I try to post something each day but occasionally get distracted.
On Friday, Monica had her blood tested again at a local lab. The results don't come as quickly through the private lab as they do when we go to Cancer Agency. We didn't get the results until today. Apparently, Monica's platelets have improved a reasonable amount and the neutrophils have improved a little. However, apparently her hemoglobin is low (this would explain why she is tired and low in energy). The nurse practitioner has scheduled another blood test for Friday. She says that they may have to consider a regular blood transfusion.
The weekend was fairly quiet and for the most part uneventful. Jesse and his girlfriend returned from their vacation late Saturday. Sounds like an exciting (but tiring) trip. We had Monica's brother, Ingo, over for dinner on Saturday. It was his birthday on Saturday, mine on Sunday and Oma's on Tuesday. On Sunday we all went to Oma's and had some black forest cake that had been given to Ingo (It was delicious even though in my heart I know it wasn't organic.) .
We've had some visitors. On Sunday, Scott and Cathy dropped in for visit. On Monday, our friends Liz and Tony dropped in for a visit and brought some hand-picked organic blueberries.
Monica is still quite tired today ( a couple of naps and sleep-in) but her spirits seem pretty good and she is fastidiously following the InsprieHealth supplement program.
First, I apologize for the gap in the updates. I try to post something each day but occasionally get distracted.
On Friday, Monica had her blood tested again at a local lab. The results don't come as quickly through the private lab as they do when we go to Cancer Agency. We didn't get the results until today. Apparently, Monica's platelets have improved a reasonable amount and the neutrophils have improved a little. However, apparently her hemoglobin is low (this would explain why she is tired and low in energy). The nurse practitioner has scheduled another blood test for Friday. She says that they may have to consider a regular blood transfusion.
The weekend was fairly quiet and for the most part uneventful. Jesse and his girlfriend returned from their vacation late Saturday. Sounds like an exciting (but tiring) trip. We had Monica's brother, Ingo, over for dinner on Saturday. It was his birthday on Saturday, mine on Sunday and Oma's on Tuesday. On Sunday we all went to Oma's and had some black forest cake that had been given to Ingo (It was delicious even though in my heart I know it wasn't organic.) .
We've had some visitors. On Sunday, Scott and Cathy dropped in for visit. On Monday, our friends Liz and Tony dropped in for a visit and brought some hand-picked organic blueberries.
Monica is still quite tired today ( a couple of naps and sleep-in) but her spirits seem pretty good and she is fastidiously following the InsprieHealth supplement program.
Thursday, August 18, 2011
Thursday, August 18, 2011
(posted by Greg)
Wednesday was a quiet day at the Greiner household. Marley was studying most of the day, I went to work and Monica spent the day at home. It might be my imagination but I think that she is showing that she has some more energy. The evidence: Monica did a good job of attacking the weeds in the garden and froze some more organic blueberries.
Today, we had an appointment with the Dr. at InspireHealth. I was glad that we went for a couple of reasons. While waiting for Monica's appointment, we connected with a lady who we met at the B.C. Cancer Brain
Tumour Support Group. She has been diagnosed with the same tumour that Monica has but had her operation last fall. We had a good conversation with her and exchanged phone numbers as well as a lot of information. She has been using (and enjoying) some of the other services provided by InspireHealth. Today she was in for a Reiki (not sure of spelling) treatment. She told us that she finds the smaller support group at InspireHealth very useful. Once again it is surprising how quickly the bonding occurs with people sharing the same experience.
Our appointment with the Dr. was really useful. She carefully reviewed with us the supplements and vitamins which we were taking. As Monica lost her taste buds, she found taking the various pills etc to be very hard and had cut some out. The Doctor emphasized to us which ones were important and why. She also made it clear that, based on their experience and in their opinion, the lifestyle/supplement/nutrition changes would/could make a significant difference. I think Marley,Monica and I came out re-committed to sticking with this plan.
The Doctor had other good advice for Monica (i.e. how to safely and best deal with the dry skin caused by the radiation - coconut oil and gentle washing- no scraping with fingernails as the skin could be susceptible to infection because of her blood situation) and reminded us that she was still feeling the effects of the radiation and that the effects are cumulative. As we spoke with the Dr, it seems clear that it might still be a while before Monica starts to get her mojo back and that we will have to be flexible on any travel plans etc which we make for the fall.
Monica likes the people at InspireHealth generally and her Dr in particular and seems to have confidence in her. The visit was reassuring to us all and reaffirmed to us that we are doing something about her tumour by adopting some of these lifestyle changes.
Tomorrow Monica has her blood tested again.
Wednesday was a quiet day at the Greiner household. Marley was studying most of the day, I went to work and Monica spent the day at home. It might be my imagination but I think that she is showing that she has some more energy. The evidence: Monica did a good job of attacking the weeds in the garden and froze some more organic blueberries.
Today, we had an appointment with the Dr. at InspireHealth. I was glad that we went for a couple of reasons. While waiting for Monica's appointment, we connected with a lady who we met at the B.C. Cancer Brain
Tumour Support Group. She has been diagnosed with the same tumour that Monica has but had her operation last fall. We had a good conversation with her and exchanged phone numbers as well as a lot of information. She has been using (and enjoying) some of the other services provided by InspireHealth. Today she was in for a Reiki (not sure of spelling) treatment. She told us that she finds the smaller support group at InspireHealth very useful. Once again it is surprising how quickly the bonding occurs with people sharing the same experience.
Our appointment with the Dr. was really useful. She carefully reviewed with us the supplements and vitamins which we were taking. As Monica lost her taste buds, she found taking the various pills etc to be very hard and had cut some out. The Doctor emphasized to us which ones were important and why. She also made it clear that, based on their experience and in their opinion, the lifestyle/supplement/nutrition changes would/could make a significant difference. I think Marley,Monica and I came out re-committed to sticking with this plan.
The Doctor had other good advice for Monica (i.e. how to safely and best deal with the dry skin caused by the radiation - coconut oil and gentle washing- no scraping with fingernails as the skin could be susceptible to infection because of her blood situation) and reminded us that she was still feeling the effects of the radiation and that the effects are cumulative. As we spoke with the Dr, it seems clear that it might still be a while before Monica starts to get her mojo back and that we will have to be flexible on any travel plans etc which we make for the fall.
Monica likes the people at InspireHealth generally and her Dr in particular and seems to have confidence in her. The visit was reassuring to us all and reaffirmed to us that we are doing something about her tumour by adopting some of these lifestyle changes.
Tomorrow Monica has her blood tested again.
Tuesday, August 16, 2011
Tuesday, August 16, 2011
(posted by Greg)
The Dr. at InspireHealth was sick today so our group session was scheduled. Instead, Monica will have a shorter session but a private session on Thursday. We have a couple of questions about the supplements and about Monica's blood so we are looking forward to the appointment. As soon as Monica has more energy, we plan on participating in more of the activities etc. offered by InspireHealth.
I went to work again today and Marley was at UBC for another study session so Monica spent a lot of the day alone. It is a shame that she isn't up for doing more right now since we are finally getting some half decent weather.
The Dr. at InspireHealth was sick today so our group session was scheduled. Instead, Monica will have a shorter session but a private session on Thursday. We have a couple of questions about the supplements and about Monica's blood so we are looking forward to the appointment. As soon as Monica has more energy, we plan on participating in more of the activities etc. offered by InspireHealth.
I went to work again today and Marley was at UBC for another study session so Monica spent a lot of the day alone. It is a shame that she isn't up for doing more right now since we are finally getting some half decent weather.
Monday, August 15, 2011
(posted by Greg)
Not much to blog about today. Marley had a study session at UBC and I worked today. So, Monica was home alone for most of the day. I brought her the fixings for lunch and checked on her a couple of times. She made out ok alone, resting quite a bit, freezing the rest of our organic blueberries and defrosting the freezer. We are scheduled for a group session with the Dr. at InspireHealth tomorrow.
Not much to blog about today. Marley had a study session at UBC and I worked today. So, Monica was home alone for most of the day. I brought her the fixings for lunch and checked on her a couple of times. She made out ok alone, resting quite a bit, freezing the rest of our organic blueberries and defrosting the freezer. We are scheduled for a group session with the Dr. at InspireHealth tomorrow.
Monday, August 15, 2011
Sunday, August 14, 2011
(posted by Greg)
Another quiet (..you know what I am going to say)...
Monica and I left Marley at home studying and went to visit Oma and Opa this morning. They continue to struggle with their problems but we had one of our better recent visits with them.
On the way home, Monica and I stopped and bought another batch of organic blueberries. We all enjoy them and I want to freeze as many of these as I can for the winter.
I had forgotten to report that on Saturday Marley and Monica went downtown to try to cheer on Marley's friend, Courtney, who was walking in the two day walk for cancer. They tried to "intercept" her 2 or 3 times but each time they arrived somewhere Courtney (who by the way finished 9th overall and was wearing a tee shirt with Monica's name on it) was 9 blocks ahead of them .They finally had to give up but Monica had a good outing.
Another quiet (..you know what I am going to say)...
Monica and I left Marley at home studying and went to visit Oma and Opa this morning. They continue to struggle with their problems but we had one of our better recent visits with them.
On the way home, Monica and I stopped and bought another batch of organic blueberries. We all enjoy them and I want to freeze as many of these as I can for the winter.
I had forgotten to report that on Saturday Marley and Monica went downtown to try to cheer on Marley's friend, Courtney, who was walking in the two day walk for cancer. They tried to "intercept" her 2 or 3 times but each time they arrived somewhere Courtney (who by the way finished 9th overall and was wearing a tee shirt with Monica's name on it) was 9 blocks ahead of them .They finally had to give up but Monica had a good outing.
Saturday, August 13, 2011
(posted by Greg)
As Monica continues to recuperate from the treatments, there is not as much activity about which to blog. I will try to not to report that Monica is having another quiet day too many times.
Having said that, Saturday was another quiet day. Monica stuck around home pretty much. She washed and froze the organic blueberries (what was left of them) which Pat and Joyce gave us. It is a good time of year to be eating healthy. I was able to buy some delicious organic cherries today as well. Better yet, our dinner today had zucchini, cucumber, beans and lettuce fresh from our own garden. ( I am starting to wish that I had had time to plant more vegetbales.
As Monica continues to recuperate from the treatments, there is not as much activity about which to blog. I will try to not to report that Monica is having another quiet day too many times.
Having said that, Saturday was another quiet day. Monica stuck around home pretty much. She washed and froze the organic blueberries (what was left of them) which Pat and Joyce gave us. It is a good time of year to be eating healthy. I was able to buy some delicious organic cherries today as well. Better yet, our dinner today had zucchini, cucumber, beans and lettuce fresh from our own garden. ( I am starting to wish that I had had time to plant more vegetbales.
Friday, August 12, 2011
Friday, August 12, 2011
(posted by Greg)
Our life is relatively quiet at the moment. Monica is resting a lot and doing some household chores etc. We are mindful that Monica's immune system isn't working right now and are being fairly careful about what we do.
My brother Pat and his wife Joyce dropped by with a big bucket of organic blueberries. Monica seems to be really enjoying them (which is good because she hasn't been enjoying the taste of much.)
This morning Marley took Monica for another round of blood tests ( I am starting to really like the pin-cushion look). Hopefully there will be some improvement in her blood.
Our life is relatively quiet at the moment. Monica is resting a lot and doing some household chores etc. We are mindful that Monica's immune system isn't working right now and are being fairly careful about what we do.
My brother Pat and his wife Joyce dropped by with a big bucket of organic blueberries. Monica seems to be really enjoying them (which is good because she hasn't been enjoying the taste of much.)
This morning Marley took Monica for another round of blood tests ( I am starting to really like the pin-cushion look). Hopefully there will be some improvement in her blood.
Tuesday, August 9, 2011
Tuesday, August 9, 2011
(posted by Greg)
We got the results of Monica's Monday blood tests. Her platelets have improved a little (they are moving in the right direction at least and she will not require a transfusion). Unfortunately, the tests show that her neutrophils (I think part of the white blood cells which fight infection.) are very low. So, she is particularly susceptible to infections (even from her own bacteria). This will mean that we are to be very careful not to expose her to anyone who is ill. She also has to be careful and take some basic precautions such as washing her hands well several times a day. We are to take her temperature and call our contacts at the Cancer Agency if her temperature goes up to high so that they can prescribe some antibiotics
Monica was initially a bit down after getting this news -kind of wondering why she keeps getting this type of news just when she is hoping to get stronger. However, on reflection, I think that she realizes that this is part of the process
I am hoping that, if the chemotherapy is doing this good a job on her blood cells, it is doing just a good a job on the tumour. I actually asked the nurse about whether or not there was any correlation like this. She said that, while they have no studies to prove it, they feel, based on anecdotal evidence, that there may be some correlation. So, maybe my hopes will not be misplaced.
We got the results of Monica's Monday blood tests. Her platelets have improved a little (they are moving in the right direction at least and she will not require a transfusion). Unfortunately, the tests show that her neutrophils (I think part of the white blood cells which fight infection.) are very low. So, she is particularly susceptible to infections (even from her own bacteria). This will mean that we are to be very careful not to expose her to anyone who is ill. She also has to be careful and take some basic precautions such as washing her hands well several times a day. We are to take her temperature and call our contacts at the Cancer Agency if her temperature goes up to high so that they can prescribe some antibiotics
Monica was initially a bit down after getting this news -kind of wondering why she keeps getting this type of news just when she is hoping to get stronger. However, on reflection, I think that she realizes that this is part of the process
I am hoping that, if the chemotherapy is doing this good a job on her blood cells, it is doing just a good a job on the tumour. I actually asked the nurse about whether or not there was any correlation like this. She said that, while they have no studies to prove it, they feel, based on anecdotal evidence, that there may be some correlation. So, maybe my hopes will not be misplaced.
Monday, August 8, 2011
Monday, August 8, 2011
(posted by Greg(
Monica went for a full blood test at a local lab today to see how her blood is doing. It isn't quite as quick as going to the Cancer Agency so we haven't heard yet about the results. Presumably, we will hear tomorrow whether or not another transfusion is required.
I spent the day at work. Monica and Marley did some chores and running around. Monica was tired and had bit of a sleep around supper time.
It looks like the Cancer Agency will do an MRI in October to see how Monica has responded to the treatments. Our next major appointment with the oncologist is scheduled for October as well (although Monica has a follow up appointment with the radiation oncologist in September.). Marley is setting up some more appointments for some of the programs at Inspirehealth as well. It would be useful to get some feedback from them.
Monica went for a full blood test at a local lab today to see how her blood is doing. It isn't quite as quick as going to the Cancer Agency so we haven't heard yet about the results. Presumably, we will hear tomorrow whether or not another transfusion is required.
I spent the day at work. Monica and Marley did some chores and running around. Monica was tired and had bit of a sleep around supper time.
It looks like the Cancer Agency will do an MRI in October to see how Monica has responded to the treatments. Our next major appointment with the oncologist is scheduled for October as well (although Monica has a follow up appointment with the radiation oncologist in September.). Marley is setting up some more appointments for some of the programs at Inspirehealth as well. It would be useful to get some feedback from them.
Sunday, August 7, 2011
Sunday, August 7, 2011
(posted by Greg)
Friday was mostly a day around home for Monica and Marley. Monica slept quite a bit but the two of them did some chores around the house. I worked a full day on Friday. After dinner we picked up Bhannu ( our former minister's wife) and had a cup of tea with her at the foreshore park on the Fraser River in Burnaby.
On Saturday, our niece, Bronwin, was participating in an art show ("Art in the Park") at Alouette lake in Maple Ridge. Monica, Marley and I picked up Barry and Sharon (my brother and sister-in-law) and had an nice afternoon looking at art. Bronwin does nice work (I particularly like her pet portraits- her website is http://www.wix.com/graphicmutt/artofthegraphicmutt). We didn't buy anything but had a nice day and a nice pub lunch with my niece and grand-niece (Jan and Amanda) on the way home.
Monica had a sleep after we went home and after she awoke wanted to go see the fireworks display on English Bay at the Festival of Lights. Over the years we have gone there quite a bit and Monica felt that she wanted to see it again this year. We went fairly early and I was able to drop Marley and Monica fairly close to the beach with our chairs, tea and radio. I then parked the car but had to park quite a distance from the beach. It was very pleasant sitting on the beach, people watching and watching the sun go down. The fireworks was spectacular ( I think one of the best that I have seen). The crowd was very big and getting away from the beach was slow and crowded. However, Monica felt strong enough to walk the 12 blocks uphill to the car and did a good job of walking in the crowd.
Today, we went to visit Oma and Opa and spent a couple of pleasant hours with them in morning visiting and doings some little chores. It makes us unhappy to see Oma so weak and having to work so hard to cope. Ingo continues to work to get their situation under control. The rest of the day was spent at home. I bought groceries and Marley went to the Whitecaps game with her friend Courtney. We had some fresh kale from the garden and tried our friend Barbara's recipe for Colcannon. We also had our first feed of fresh broccolli from the garden. ( We were able to eat organic without increasing the mortgage on our house.).
Friday was mostly a day around home for Monica and Marley. Monica slept quite a bit but the two of them did some chores around the house. I worked a full day on Friday. After dinner we picked up Bhannu ( our former minister's wife) and had a cup of tea with her at the foreshore park on the Fraser River in Burnaby.
On Saturday, our niece, Bronwin, was participating in an art show ("Art in the Park") at Alouette lake in Maple Ridge. Monica, Marley and I picked up Barry and Sharon (my brother and sister-in-law) and had an nice afternoon looking at art. Bronwin does nice work (I particularly like her pet portraits- her website is http://www.wix.com/graphicmutt/artofthegraphicmutt). We didn't buy anything but had a nice day and a nice pub lunch with my niece and grand-niece (Jan and Amanda) on the way home.
Monica had a sleep after we went home and after she awoke wanted to go see the fireworks display on English Bay at the Festival of Lights. Over the years we have gone there quite a bit and Monica felt that she wanted to see it again this year. We went fairly early and I was able to drop Marley and Monica fairly close to the beach with our chairs, tea and radio. I then parked the car but had to park quite a distance from the beach. It was very pleasant sitting on the beach, people watching and watching the sun go down. The fireworks was spectacular ( I think one of the best that I have seen). The crowd was very big and getting away from the beach was slow and crowded. However, Monica felt strong enough to walk the 12 blocks uphill to the car and did a good job of walking in the crowd.
Today, we went to visit Oma and Opa and spent a couple of pleasant hours with them in morning visiting and doings some little chores. It makes us unhappy to see Oma so weak and having to work so hard to cope. Ingo continues to work to get their situation under control. The rest of the day was spent at home. I bought groceries and Marley went to the Whitecaps game with her friend Courtney. We had some fresh kale from the garden and tried our friend Barbara's recipe for Colcannon. We also had our first feed of fresh broccolli from the garden. ( We were able to eat organic without increasing the mortgage on our house.).
Thursday, August 4, 2011
Thursday, August 4,2011
(posted by Greg)
Monica had a fairly quiet day today. No appointments at the Cancer Agency today and no trips etc. Scott and Cathy dropped in for a short visit as they passed through Vancouver on their way home.
The Cancer Agency has arranged for Monica to have some more blood tests on Monday morning as they continue to monitor her platelets.
Monica had a fairly quiet day today. No appointments at the Cancer Agency today and no trips etc. Scott and Cathy dropped in for a short visit as they passed through Vancouver on their way home.
The Cancer Agency has arranged for Monica to have some more blood tests on Monday morning as they continue to monitor her platelets.
Wednesday, August 3, 2011
Wednesday, August 3, 2011
(posted by Greg)
As expected, the Cancer Agency wanted Monica to have another platelet transfusion today. We were already scheduled to attend the Brain Tumour Support Group from 9:30 a.m. to 11:00 a.m. We went early to have Monica's blood screening done again (they do it before each transfusion) and Monica went after the meeting to have her transfusion. I took the bus back to work and Marley stayed with Monica.
We again found the support group meeting to be interesting and helpful. The meeting is always well attended and seems to be enjoyed by everyone who attended. Some of the stories which the participants related were very moving and some of the problems were interesting.
- We met another woman who like Monica suddenly discovered she had a tumour. She has two children. It was moving listening to her talk about her commitment to make the most of whatever time she has.
- One young girl who is recovering has started travelling by bus on her own. She looks fine but has balance issues and some other minor physical problems. When she sits on the most accessible seats (those reserved for the disabled and elderly), she is sometimes made to feel uncomfortable because she doesn't look like she has a disability.)
-We learned about how the radiation can effect your ears. Apparently the hair on the inside of your ears can be affected and the radiation can cause the earwax to harden causing discomfort or temporary loss of hearing.
-Another young man is hoping to return to work but realizes that he is worried about the upcoming testing that will have to be done to determine his ability. The group talks quite a bit about having to adjust to the "new normal"
As expected, the Cancer Agency wanted Monica to have another platelet transfusion today. We were already scheduled to attend the Brain Tumour Support Group from 9:30 a.m. to 11:00 a.m. We went early to have Monica's blood screening done again (they do it before each transfusion) and Monica went after the meeting to have her transfusion. I took the bus back to work and Marley stayed with Monica.
We again found the support group meeting to be interesting and helpful. The meeting is always well attended and seems to be enjoyed by everyone who attended. Some of the stories which the participants related were very moving and some of the problems were interesting.
- We met another woman who like Monica suddenly discovered she had a tumour. She has two children. It was moving listening to her talk about her commitment to make the most of whatever time she has.
- One young girl who is recovering has started travelling by bus on her own. She looks fine but has balance issues and some other minor physical problems. When she sits on the most accessible seats (those reserved for the disabled and elderly), she is sometimes made to feel uncomfortable because she doesn't look like she has a disability.)
-We learned about how the radiation can effect your ears. Apparently the hair on the inside of your ears can be affected and the radiation can cause the earwax to harden causing discomfort or temporary loss of hearing.
-Another young man is hoping to return to work but realizes that he is worried about the upcoming testing that will have to be done to determine his ability. The group talks quite a bit about having to adjust to the "new normal"
Tuesday, August 2, 2011
(posted by Greg)
Bloodtest for Monica this morning. The Cancer Agency called late in the day to let us know that Monica's platelets continue to be low. We expect that this may mean another transfusion of platelets.
The day was quiet and uneventful other than the arrival of Jesse's girlfriend,Sydney. We had a nice dinner with them. They plan to leave on a vacation/roadtrip tomorrow.
Bloodtest for Monica this morning. The Cancer Agency called late in the day to let us know that Monica's platelets continue to be low. We expect that this may mean another transfusion of platelets.
The day was quiet and uneventful other than the arrival of Jesse's girlfriend,Sydney. We had a nice dinner with them. They plan to leave on a vacation/roadtrip tomorrow.
Tuesday, August 2, 2011
Monday, August 1, 2011
(posted by Greg)
Today was a quiet (but nice) day at home for the whole family. Nothing much to blog about. Monica rested quite a bit today.Tomorrow Monica gets another blood test to check her platelet count.
Today was a quiet (but nice) day at home for the whole family. Nothing much to blog about. Monica rested quite a bit today.Tomorrow Monica gets another blood test to check her platelet count.
Monday, August 1, 2011
Sunday, July 31, 2011
(posted by Greg)
I thought that I might joke with Monica that now, with her hair shaved off, we looked like twins. I decided against that jest because I realized that being my twin might not be too reassuring for her.
Joking aside, Monica seems fairly comfortable with her hair off. It is interesting how quickly the rest of us have stopped noticing it and have accepted this as the new norm.
I think that it was a good idea for her to shave her hair as we can all have a good look at the condition of the skin on her head. There are a couple of spots where the skin looks "burned". Marley has bought some cream and started to help Monica moisturize and treat those spots.
Our day was fairly quiet. Marley, Monica and I did make a visit to Oma and Opa. They are taking things very easy and trying to adjust to having help come to the house.
I thought that I might joke with Monica that now, with her hair shaved off, we looked like twins. I decided against that jest because I realized that being my twin might not be too reassuring for her.
Joking aside, Monica seems fairly comfortable with her hair off. It is interesting how quickly the rest of us have stopped noticing it and have accepted this as the new norm.
I think that it was a good idea for her to shave her hair as we can all have a good look at the condition of the skin on her head. There are a couple of spots where the skin looks "burned". Marley has bought some cream and started to help Monica moisturize and treat those spots.
Our day was fairly quiet. Marley, Monica and I did make a visit to Oma and Opa. They are taking things very easy and trying to adjust to having help come to the house.
Saturday, July 30, 2011
Saturday Morning, July 30, 2011
(posted by Greg)
Monica has been noticing that she has been increasingly losing her hair. So, this morning when she woke up she decided to shave off all her hair (partly to avoid the mess of it falling out and partly so that she can check (and treat if necessary) her skin. We all had a bit of a cry over this but she is determined to go ahead. As I am writing this blog, she is in the backyard and Marley is using the clippers on her hair.
Monica has been noticing that she has been increasingly losing her hair. So, this morning when she woke up she decided to shave off all her hair (partly to avoid the mess of it falling out and partly so that she can check (and treat if necessary) her skin. We all had a bit of a cry over this but she is determined to go ahead. As I am writing this blog, she is in the backyard and Marley is using the clippers on her hair.
Friday, July 29, 2011
(posted by Greg).
Monica had her last radiation treatment yesterday. It's hard to believe that 6 weeks has gone by already. Feelings were kind of mixed as we left the radiation station on Thursday. We have become attached to the wonderful people there. We will miss them and the jigsaw puzzles. We brought a new jigsaw from home and left it with the others in the waiting area.
I am sure however that Monica won't miss the radiation treatments. They gave us her radiation mask to do with what we will (maybe blow it up? or use it next halloween?- take up hockey?)
Monica had her bloodwork done again on Thursday as well. Her platelets were still low but, because they are starting to show some improvement, she did not get another transfusion. We are to have her blood checked again on Tuesday to make sure that she doesn't require any further treatment.
It may be my imagination but its seems that Monica's energy level was already higher today. She didn't nap as much and was doing some sewing for Jesse.
Monica had her last radiation treatment yesterday. It's hard to believe that 6 weeks has gone by already. Feelings were kind of mixed as we left the radiation station on Thursday. We have become attached to the wonderful people there. We will miss them and the jigsaw puzzles. We brought a new jigsaw from home and left it with the others in the waiting area.
I am sure however that Monica won't miss the radiation treatments. They gave us her radiation mask to do with what we will (maybe blow it up? or use it next halloween?- take up hockey?)
Monica had her bloodwork done again on Thursday as well. Her platelets were still low but, because they are starting to show some improvement, she did not get another transfusion. We are to have her blood checked again on Tuesday to make sure that she doesn't require any further treatment.
It may be my imagination but its seems that Monica's energy level was already higher today. She didn't nap as much and was doing some sewing for Jesse.
Tuesday, July 26, 2011
Tuesday, July 26, 2011
(posted by Greg)
Monica made two trips today to the Cancer Agency. Jesse took her in the morning to her blood screened and grouped so that she could have a platelet transfusion in the afternoon. Monica, Jesse and I went back in the afternoon. Monica had her 3rd to last radiation treatment at 2:00 p.m. and a follow up visit with the dr. shortly thereafter. From 3:00 pm. until about 4:30 Monica received the platelet transfusion.
The transfusion is given in a bright room on the 6th floor. Two other patients were receiving transfusions. It was interesting to watch the 3 patients start to share their stories with one another and start to bond. It makes one realize how much some people are suffering from cancer.
Marley came home for supper and Jesse went to Oma's to spend the night. It seems pretty clear that Oma will require more care than she can probably get at home. Ingo is working hard on a solution. Meals on Wheels starts tomorrow along with two-a-day visits from in-home care providers. We are worried about them being alone in the evenings. There are probably some hard decisions coming. Naturally, Monica finds it emotionally hard to think about these issues.
Monica made two trips today to the Cancer Agency. Jesse took her in the morning to her blood screened and grouped so that she could have a platelet transfusion in the afternoon. Monica, Jesse and I went back in the afternoon. Monica had her 3rd to last radiation treatment at 2:00 p.m. and a follow up visit with the dr. shortly thereafter. From 3:00 pm. until about 4:30 Monica received the platelet transfusion.
The transfusion is given in a bright room on the 6th floor. Two other patients were receiving transfusions. It was interesting to watch the 3 patients start to share their stories with one another and start to bond. It makes one realize how much some people are suffering from cancer.
Marley came home for supper and Jesse went to Oma's to spend the night. It seems pretty clear that Oma will require more care than she can probably get at home. Ingo is working hard on a solution. Meals on Wheels starts tomorrow along with two-a-day visits from in-home care providers. We are worried about them being alone in the evenings. There are probably some hard decisions coming. Naturally, Monica finds it emotionally hard to think about these issues.
Monday, July 25, 2011
Monday, July 25, 2011
(posted by Greg)
I took Monica to InspireHealth today for an accupuncture treatment and then to the Cancer Agency for her blood test and radiation treatment (only 3 to go!). Unfortunately, Monica's platelets continue to be low. So, she is scheduled for another platelet transfusion following her radiation treatment tomorrow. The radiation treatment is scheduled for 2:00 p.m. but we have to go to the Cancer Agency Lab for blood screening and grouping so that they can order the correct platelet types. So, tomorrow will be a long day. Jesse will probably take Monica in the morning and I will take her in the afternoon.
Marley spent today at Oma's helping Ingo and she is going to sleep there tonight. Ingo is making arrangements for meals on wheels and for some homecare. Oma is feeling like she needs to be somewhere where she can get more help. So, I suspect that the family will have to begin looking at the options in that regard.
I took Monica to InspireHealth today for an accupuncture treatment and then to the Cancer Agency for her blood test and radiation treatment (only 3 to go!). Unfortunately, Monica's platelets continue to be low. So, she is scheduled for another platelet transfusion following her radiation treatment tomorrow. The radiation treatment is scheduled for 2:00 p.m. but we have to go to the Cancer Agency Lab for blood screening and grouping so that they can order the correct platelet types. So, tomorrow will be a long day. Jesse will probably take Monica in the morning and I will take her in the afternoon.
Marley spent today at Oma's helping Ingo and she is going to sleep there tonight. Ingo is making arrangements for meals on wheels and for some homecare. Oma is feeling like she needs to be somewhere where she can get more help. So, I suspect that the family will have to begin looking at the options in that regard.
Sunday, July 24, 2011
(posted by Greg)
Monica was very tired today, napping a lot between meals, and so we didn't do much today.
Marley spent most of the day at Oma and Opa's helping Ingo deal with getting them settled into a routine now that Oma is home. Their situation is going to pose a problem for the family. Monica finds it hard to think about and gets quite emotional and frustrated that she is not in a position to help more.
Tomorrow the Cancer Agency will check Monica's blood again and she will have her 4th to last radiation treatment.
Monica was very tired today, napping a lot between meals, and so we didn't do much today.
Marley spent most of the day at Oma and Opa's helping Ingo deal with getting them settled into a routine now that Oma is home. Their situation is going to pose a problem for the family. Monica finds it hard to think about and gets quite emotional and frustrated that she is not in a position to help more.
Tomorrow the Cancer Agency will check Monica's blood again and she will have her 4th to last radiation treatment.
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