(posted by Greg)
As expected, the Cancer Agency wanted Monica to have another platelet transfusion today. We were already scheduled to attend the Brain Tumour Support Group from 9:30 a.m. to 11:00 a.m. We went early to have Monica's blood screening done again (they do it before each transfusion) and Monica went after the meeting to have her transfusion. I took the bus back to work and Marley stayed with Monica.
We again found the support group meeting to be interesting and helpful. The meeting is always well attended and seems to be enjoyed by everyone who attended. Some of the stories which the participants related were very moving and some of the problems were interesting.
- We met another woman who like Monica suddenly discovered she had a tumour. She has two children. It was moving listening to her talk about her commitment to make the most of whatever time she has.
- One young girl who is recovering has started travelling by bus on her own. She looks fine but has balance issues and some other minor physical problems. When she sits on the most accessible seats (those reserved for the disabled and elderly), she is sometimes made to feel uncomfortable because she doesn't look like she has a disability.)
-We learned about how the radiation can effect your ears. Apparently the hair on the inside of your ears can be affected and the radiation can cause the earwax to harden causing discomfort or temporary loss of hearing.
-Another young man is hoping to return to work but realizes that he is worried about the upcoming testing that will have to be done to determine his ability. The group talks quite a bit about having to adjust to the "new normal"
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